MyEndometriosisTeam

Welcome! What a lot to be navigating all at once — you're definitely not alone in this. Many MyEndometriosisTeam members have faced similar crossroads when weighing whether a hysterectomy is the right step.

Here's what members and research suggest about hysterectomy outcomes:

- One MyEndometriosisTeam member who kept their Show Full Answer

Welcome! What a lot to be navigating all at once — you're definitely not alone in this. Many MyEndometriosisTeam members have faced similar crossroads when weighing whether a hysterectomy is the right step.

Here's what members and research suggest about hysterectomy outcomes:

- One MyEndometriosisTeam member who kept their ovaries after uterus removal said pain came back after about six months but was less intense overall — reporting about 75% improvement with no regrets
- Another member had relief for roughly three and a half years after a total hysterectomy
- Some members, however, found their pain returned and felt disappointed with the outcome
- A 2020 study found that about 21.6% of people experienced a return of severe pain after 37+ months It's really important to know that hysterectomy does not cure endometriosis. There is currently no cure. Pain can return if endometriosis tissue remains elsewhere in the body. Regarding migraines, endometriosis and migraines are closely linked — women with endo are nearly twice as likely to experience migraines. Hormonal shifts play a big role, particularly drops in estrogen.

A few things worth discussing with your doctor:

- Keeping at least one ovary can help avoid early menopause and the hormonal swings that can trigger migraines
- Removing both ovaries triggers early menopause, which carries its own risks including bone loss and mood changes
- Some hormonal treatments (estrogen-based) can worsen migraines, while progesterone-only options typically do not Given your specific combination of symptoms — frequent periods, low iron, migraines with aura, and both diagnoses — this is really a conversation worth having in depth with a specialist. A gynecologist experienced in endometriosis excision can help weigh whether surgery makes sense and what approach best fits your situation.

You're asking all the right questions. 💛

 AI-generated responses are not a substitute for medical advice. These services are not intended to diagnose, treat, or cure any condition or disease. Always ask your doctor about specific health concerns.

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