I’m sure this question has been asked before, but I’m wondering how many of you chose not to take birth control or other hormones once diagnosed and how is your pain? I’m 37 and was just diagnosed this March when they found a Endometrioma in my left ovary. Unfortunately the Endometrioma was also a borderline tumor so I elected to have the ovary removed as well. Except for one tiny spot, I had no other lesions at the time of my second surgery in May.
I noticed I’… read more
I can't use birth control so I've never taken anything for endo other than analgesics. I think I have been fortunate in the sense that while I have had chronic pelvic pain for a while now, most of the time it is relatively mild. (Nothing at all compared to what some of the ladies here seem to go through, anyway!) Just last week I had a 4cm chocolate cyst and a couple of patches of minor endo removed via laparoscopy so I'm keen to see what effect that has on my pelvic pain.
I’m sort of the reverse! My doctor won’t give me a lap but says I have adeno and probably have endo Due to my symptoms (painful sex, very painful periods, severe bloating fatigue, ovarian cysts when not on hormones). I was previously on regular birth control ten years which seemed to have numbed my symptoms and I never noticed the pain until I came off of ocp. After a year of intense pain I was put on Visanne (progesterone only pill) three months ago. It’s been hard. Pain is less but still there and I’ve been having trouble with side effects like even more fatigue than normal and extreme dizziness
Thanks for the response! I’m also trying to change my diet... limit dairy and gluten to see if it helps.
Good luck to you as well!
I’m in a similar situation having been recently diagnosed after removal of endometrioma during lap surgery.
I already know that I don’t respond well to hormonal therapies (nightmares with bc pills and Mirena) so when my dr prescribed lupron for me just a day after surgery, I knew I had to find some other way. Since I’m at a minimal level I just wanted to understand the illness better and get a sense of my own body. I’m absolutely no expert but from learning that endo is an inflammatory disease that afffects and is affected by immune and circulatory systems, I’m interested to try a few things: 1. Reduce exposure to estrogen and foods/substances that increase estrogen levels 2. Reduce inflammation- my starting point is the metabolism plan which is an elimination style anti-inflammatory diet, also some supplements that are known to fight inflammation 3. Improve my immune and circulatory systems - ordered some enzymes and supplements following some posts I read here 4. Manage pain - bought some progesterone cream and Castor oil to add to my hot water bottle and ibuprofen kit.
It sounds like a lot and I probably sound crazy but I am determined to try and meet this thing head on while it’s manageable enough to do so...
I’m amazed by all the strong women and their stories here and inspired to really understand what is happening in my body and the things that impact it...
Good luck to you!