Hello
I’m sure this question has been asked before, but I’m wondering how many of you chose not to take birth control or other hormones once diagnosed and how is your pain? I’m 37 and was just diagnosed this March when they found a Endometrioma in my left ovary. Unfortunately the Endometrioma was also a borderline tumor so I elected to have the ovary removed as well. Except for one tiny spot, I had no other lesions at the time of my second surgery in May.
I noticed I’m starting to have more… read more
I can't use birth control so I've never taken anything for endo other than analgesics. I think I have been fortunate in the sense that while I have had chronic pelvic pain for a while now, most of the time it is relatively mild. (Nothing at all compared to what some of the ladies here seem to go through, anyway!) Just last week I had a 4cm chocolate cyst and a couple of patches of minor endo removed via laparoscopy so I'm keen to see what effect that has on my pelvic pain.
I’m sort of the reverse! My doctor won’t give me a lap but says I have adeno and probably have endo Due to my symptoms (painful sex, very painful periods, severe bloating fatigue, ovarian cysts when not on hormones). I was previously on regular birth control ten years which seemed to have numbed my symptoms and I never noticed the pain until I came off of ocp. After a year of intense pain I was put on Visanne (progesterone only pill) three months ago. It’s been hard. Pain is less but still there and I’ve been having trouble with side effects like even more fatigue than normal and extreme dizziness
Thanks for the response! I’m also trying to change my diet... limit dairy and gluten to see if it helps.
Good luck to you as well!
Yeah it seems the side effects of a lot of the drugs are worse than the Endo pain, it’s hard to decide whether to stick with them or not
I took a 90 day hormone treatment which lowered my estrogen significantly. I felt great while on it and a few months after, but the pain came right back. I am going back to the doctor next week to talk about options. I would talk to your doctor about what birth control will be right for you.