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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has anyone tried Orilissa yet?

A MyEndometriosisTeam Member asked a question 💭
Houston, TX

My dr is wanting me to try a new medicine called Orilissa. It has just been approved by the FDA in the US. My dr told me it is similar to the lupron shot without the side effects and it’s made specifically for endo pain.

August 30, 2018
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Answer Summary

Members connected over their experiences with Orilissa, a newly FDA-approved medication for endometriosis pain, with many sharing that... Read more

Members connected over their experiences with Orilissa, a newly FDA-approved medication for endometriosis pain, with many sharing that insurance companies initially resisted coverage but eventually approved it after doctors pushed for authorization. Several members found relief within the first weeks of treatment, though common side effects included headaches, nausea (which improved when taken with food), and insomnia, with one member noting the manufacturer offers a program called Ori for Me that can reduce costs to as low as $5 per month. A recurring theme was cautious optimism tempered by past experiences with Lupron, balanced by hope that this newer treatment might offer pain relief without the same intensity of side effects.

A MyEndometriosisTeam Member

I just started two days ago and received the $5.01 promotional price. I’ve had some headaches and nausea but I can’t tell if it’s from the meds or the endo. I did very well w the lupron shot a few years ago so I’m hopeful!

October 28, 2018
A MyEndometriosisTeam Member

@A MyEndometriosisTeam Member I started the once a day pill Saturday and I honestly haven’t seen a difference yet. My insurance put up a fight also but finally gave in! Good luck!

September 24, 2018
A MyEndometriosisTeam Member

It is Lupron in pill form!

August 30, 2018
A MyEndometriosisTeam Member

I’ve found if I eat when I take my medicine I don’t get nausea. But if I don’t, I do. I only had headaches for the first little while. I have taken it for about 1.5 months now and I feel like I am getting some relief. Hope you ladies are too!

October 29, 2018
A MyEndometriosisTeam Member

Hi @A MyEndometriosisTeam Member you can check my updates I posted about the side effects I'm experiencing. Also the makers have a program when you can get the medication for free or as low as $5 for a month supply, your can ask your dr, is called ori for me. I received mine for free. There's more info on the website.

October 17, 2018

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