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I feel like I am going crazy. I have asked my doctors again and again to check if I have an autoimmune disease but no one takes me seriously. Well, I got bloodwork done and of course I test positive for autoimmune antibodies. But wouldn't it make sense for people with endo to have positive autoimmune antibodies? Think about it. We have uterine tissue growing in places it doesn't belong. Can't your body recognize that as foreign and start attacking it? Obviously, I'm not a doctor but it just… read more
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Members connected over the question of whether endometriosis could be an autoimmune disease, with several sharing their own experiences of... Read more
Shannon. I would try a reumatologist if you really want to try and find out. Fibromyalgia is real but it normally comes as a secondary reumatologic dissease, secondary to something else. Like in my case it is secondary to spondylitis and so on.
Reumatologists do not treat endometriosis though im in total agreement it is an autoimune dissease, its our own body not being able to dispose endometrial cells instead making them grow.
Good luck at finding answers
Thank you for responding! I'm glad I'm not the only one who has thought about this. Auto-immune diseases run in my family and my bloodwork has shown a positive ANA every time they have tested it in the past year, but no previous times from past years. The rheumatologist just said don't worry about it. He thinks I just have fibromyalgia and no other autoimmune diseases, even with the positive ANA. I can't get him to take me seriously, so I have just given up and I won't pursue it. I'm not sure I really agree with the fibro diagnosis, but I don't think I will pursue the autoimmune route any more. If I did, I would have to find a better doctor. I'm just thinking that maybe the positive ANA could be from the endo.
Like you said, Paula, everything is related. Either way I have inflammation in my body and need to try to reduce it so I think I will focus on that. I hope that researchers look into this more. I don't think doctors have done enough research in this area. Doctors don't know enough about endo or about autoimmune diseases anyway and usually know very little.
Thank you guys! I really appreciate your thoughts!
Endo is not classified as an autoimmune disorder, though some believe it should be. Researchers have found that people with endo are at higher risk for certain autoimmune disorders. I think if endo led to having autoimmune antibodies, doctors would use bloodwork as a screening for endo; but as of now we don't really have any decent screening tools. Whatever it turns out to be, I am keeping my fingers crossed and hoping for the best possible outcome for you 💛💛
Yep women with endimetriosis have it high.
@A MyEndometriosisTeam Member that's interesting; I have heard of that as a screening for ovarian cancer, but not endo. I'll have to do some more reading about that.
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