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A MyEndometriosisTeam Member asked a question 💭
Holland, MI

I had my second lap surgery this last week and they found endo, again on my left uterus. It was mild, though the pain it had been causing me was not, and they also found it on a nerve. They tried to get rid of it twice during surgery but said my leg kept reacting during and they didn't want anything to happen, so they played it safe and opted to leave it for now. What options do I have for the future? I know it'll get worse, so I'm wondering what they can do about it. Thank you!

November 26, 2018
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A MyEndometriosisTeam Member

Hi! Did you get any answers? I had a lap last year and also had endo on a nerve that made my leg jump. They didn’t touch it. Well last week I had a very painful IUI that now has caused me pain in my left side that sends tingles down my leg. My leg feels weaker and sometimes when it’s bad it’s almost numb :( it’s scary.

February 8, 2019
A MyEndometriosisTeam Member

Thank you both! I'm not sure if it was the sciatic nerve or not (have my follow up Monday) but I have had ongoing sciatic problems so I wouldn't be surprised. From what I've also read it seems rare. Thank you so much for the FB recommendation Stacey!

I did have ablation this time vs. excision - I'm hoping to have another child soon (we have infertility problems) but after that I want to just go excision. Drs seem to think that it's not necessary because it's always stage 1 or 2 but it's obviously coming back quickly so the ablation is not working. I just did PT for my bladder but they did mention it for endo so I'll look into it!

November 26, 2018

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