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A MyEndometriosisTeam Member asked a question 💭
Miami, FL

I've had sciatica pain and foot pain for about 4 years. I have told my doctor who did my 2 surgeries and he said it could be the endometriosis, but when he did the laparoscopy, he didnt see anything in the abdomen that was pressuring any nerves. I do have a mesh in my lower back and abdomen so that way the endo doesnt grow. I have tried all sorts of physical therapy, bought new shoes
/insoles, and nothing has worked. I get tingling on both my legs from my lower back/glutes and I get… read more

November 28, 2018
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A MyEndometriosisTeam Member

Have you tried osteopath. I found it helped me more than physio

November 29, 2018
A MyEndometriosisTeam Member

Hello dear! I experience sciatic pain primarily in my left leg, sometimes in my right when I exercise or have bouts of motion. I also have consistent abdominal pain. I do not have back problems normally. This is only associated to the endometriosis. If I’m having a bad pain day in my abdomen and lower back, I’ll get pain in my tailbone, then the sciatica pain starts. I see a pain dr what does a procedure called a caudal. He does injections in my coccyx which helps with the tailbone and sciatica pain for about 6 months. This relief does wear off though. Sending you lots of love and a big hug! ❤️

November 29, 2018
A MyEndometriosisTeam Member

Crazy I have had those exact same problems. When the endo was returning after yet another surgery the cramping in my legs and feet would start. Finally someone else has those same symptoms as me!

November 28, 2018 (edited)
A MyEndometriosisTeam Member

Please be-aware!! Endometriosis can also grow in the nerves! It’s very hard to be diagnosed with this as I have suffered with sciatic pains in my right lower back (piriformis muscle area) for 5 years!! The pains were excruciating and only way I was diagnosed was through a contrast MRI. It’s very hard to get it through NHS unless you’re referred to a hospital. I had to go Cyprus and paid for my scans. I brought them back and luckily I was seen to at UCLH! They confirmed I had DIE Deep infiltrating endometriosis. There’s a very few people who can do this type of surgery in the U.K. I had to go private. Please please get private health care asap if you havnt been diagnosed with endometriosis otherwise it does cost around £20k in the U.K.!
Mr Shaheen Khazali is a specialist in Neuropelveology. You can go straight to him and have your tests done privately. Iv had my surgery on July 20th 2024 and I am still struggling to walk as it affected my foot. But the pain has eased immensely!
I was told I had a very large mass of endometriosis surrounding my sciatic nerve.

April 8, 2025
A MyEndometriosisTeam Member

I had sciatica for several years but it turned out it originated in the glutes-- the only thing that helped me was trigger point acupuncture (with an excellent acupuncturist-- Colleen Canyon-- it is painful but it is worth it). It just released all those layers of muscles enough to release the one that was putting pressure on the nerve-- now I just maintain being pain-free with strengthening and stretching exercises (core- especially hips/glutes). I had gone to physical therapy (a really good place) for almost a year before I found the acupuncturist, but the PT didn't help until I released those muscles. (But what I learned at PT helped to maintain being pain-free after the acupuncture.)

December 9, 2018

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A MyEndometriosisTeam Member asked a question 💭
Bronx, NY

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