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Sweating/ Cold Sweats With Pain
A MyEndometriosisTeam Member asked a question 💭

Does anyone get crazy hot and sweat and then cold sweat with pain? It happens to me every morning once i start moving

posted February 28, 2019
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A MyEndometriosisTeam Member

Hey there! The medical community has known about endometriosis since the 1800's. Because women have been unimportant in society, our health iasues have always been put on the back burner.

Endo DOES cause tons of health problems in women. It has been proven over and over again.

Lupus, RA, fibromyalgia, Hashimoto's thyroiditis, chronic fatigue, depression, anxiety, and many, many other autoimmune disorders have found to be co-morbidities with endometriosis. Interstitial Cystitis is HUGE with endometriosis.

And losing weight? It is so very difficult when pain is unbearable as we are unable to exercise. Yet exercise is healthy and helps with pain. It is a double-edged sword.

posted April 10, 2019
A MyEndometriosisTeam Member

Hi ChayaMiriamWeissman,

How cute? You must be on cloud nine. My daughter always wanted a dog. I prefer dogs too but I didn't know how much work is involved in taking care of them. I heard cats are easier to take care of. I welcomes a pure breed beagle and he's turning one in May. I tend to him because my daughter's at school. She's suppose to do it but he has become my responsibility.
Chaya, I started my antibiotics for UTI.....I've been getting a UTI for 2 years since deep excision surgery that validated Dr. Seckin's diagnosis and confirmed it wasn't in my head. I got diagnosed with urinary retension.....had renal sonogram and after emptying I have to go again. I needed the surgery that Dr. Seckin...preformed and I read about the risks. Im taking antibiotics and will retest. Praying macrobid...will work. I'm going to have to put diabolic papers in because I doctors that were treating me and I can't see them because I can't go under cobra.....had to go under a different insurance....I had medical for the family.....husband left teaching and started company......I was paying for the bills while he bought low income houses in MI. ....anyhow, ...everything happens for a reason..I knew something was seriously wrong and Im so glad one thing led into anothe thing....if it wasn't foe the kidney stones....I wouldn't have seen the doctor.

I'm so thankful for being here. I have a mission.

posted April 5, 2019
A MyEndometriosisTeam Member

Hi ChayaMiriamWeissman,

Thank you for the hug. I'm very appreciative of the people I have in my life. I believe I did the right thing by going on a medical leave. I had 2 brain scan but the second one picked up median portion of right tranverse....sinus is developmentally duplicated and I've asked 3 excellent ENT if this is causing benign paroxysmal positional vertigo and they can't say. The neurologist who treated me after accident I've revised and asked him and he said dizziness is coming from neck. I haven't driven yet because now I have a lump on neck. I told primary care physician who is also my cardiologist and my neurologist and called Dr. Seckin's office and told them what's going on. Dr. Seckin removed scar tissue that was endometriosis. I noticed my belly getting bigger and went back to everyone to get answers. My BP is slightly elevated but I think its because I'm in pain and I'm getting dizzy still. I have the Epley...maneuver done twice because all other attempts didn't stop the nystagmus. The other thing that I'm dealing with is urinary retention. I empty my bladder and I have to go again. I kept telling them there's something wrong. I can not return to my urologist and have to go to someone else. Dr. Seckin....doesn't take the insurance I have now since I'm not teaching.....I had the disability papers filled out but never submitted. I thought there was no need for it and that I would get better. I cannot say what's causing numbness and difficulty with lifting arms and standing on legs for an 8 hour day. I used to lean on bookcases, tables, and walls. My legs couldn't keep me up abs knees would buckle a lot. Please text anything else I can do to not feel helpless.

posted April 4, 2019
A MyEndometriosisTeam Member

Hi ChayaMiriamWeissman,

I have a friend who had surgery to remove endo and can not continue BC because she has high blood pressure and medication for BP and doctors took her off.

posted April 4, 2019
A MyEndometriosisTeam Member

Yes. I wasn't on any medications. I explained to my doctor that I would have hot flashes. I could be in a lot of pain and get very hot and would start sweating like someone just had thrown water on me. Sometimes I wouldn't have to be in pain and still would experience a hot flash along with being nauseated but, only during my cycle. But my doctor would say mmmhhh like okay don't understand why that's happening. I still get nauseated if I'm on my cycle or not.

posted March 7, 2019

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