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I had extensive excision surgery recently by a renowned specialist, however I can feel the same pains and symptoms coming back, is it possible for it to come back this quickly after such surgery. Look forward to hearing about your experiences

April 23, 2019
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Answer Summary

Members shared their experiences with endometriosis returning after excision surgery, with recurrence timelines ranging from just a few months... Read more

Members shared their experiences with endometriosis returning after excision surgery, with recurrence timelines ranging from just a few months to over a year, and several describing symptoms that felt worse than before. Many members emphasized the importance of advocating for yourself and telling your doctor immediately if you suspect the endometriosis has returned, rather than waiting or worrying the pain might be imagined. A recurring theme was exploring both medical and holistic approaches, including hormone therapies like birth control or IUDs, treating underlying gut issues like SIBO that may fuel endometriosis growth, and seeking second opinions or specialists when initial treatments fall short.

A MyEndometriosisTeam Member

Mine came back really fast after excision surgery too. It turned out I had really bad gut dysbiosis and that was feeding it. Once I treated my SIBO my pain decreased. I didn’t even think my gut issues were that bad, I would get constipated for a day a few times per month and would occasionally get bloated, making me look pregnant. It was at the bottom of my list of issues when I went to a new naturopath but thankfully she knew that was the root cause of my pain.

April 24, 2019
A MyEndometriosisTeam Member

Mine also came back, but in a different area and came back pretty badly. My OBGYN initially wanted to just do medical treatments - birth control plus IUD, then IUD plus Orilissa, but none of it was enough. So she referred me to a specialist. If you have pain that's come back or increasing after, be open and honest. It means it's either back or your current treatment isn't right. After my most recent excision, I still had to go back on hormone therapies after only six months (birth control AND IUD). but that made a MASSIVE difference. Are you on anything at all since surgery?

February 10, 2022
A MyEndometriosisTeam Member

The scan picked up the endometrioma cyst - it wouldn't have picked up the endometriosis tisue.

August 31, 2019
A MyEndometriosisTeam Member

I thought scans didn’t pick up endometriosis tissue? What kind of scan was it?

August 10, 2019
A MyEndometriosisTeam Member

I had a scan a couple of months after my surgery and my endometrioma had returned.

August 9, 2019

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