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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Lupron

A MyEndometriosisTeam Member asked a question 💭
Newmarket, ON

I just came from the doctors and asked about getting the Lupron injections. I know I feel like I may be jumping the gun after only having my first period post surgery, but I just feel like I am SO over taking pills (after being on them for 10 years) and the pain was shocking. He said to wait until my next period (which won’t be for another 3 months from now) until fully deciding if Lupron is the way to go. Fair enough. Since I will have another 3 months to decide, I am hoping to hear back from… read more

May 2, 2019
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Answer Summary

Members shared mixed experiences with Lupron injections for managing endometriosis symptoms, with the most common side effect being severe hot... Read more

Members shared mixed experiences with Lupron injections for managing endometriosis symptoms, with the most common side effect being severe hot flashes, followed by increased anxiety, bone pain, and in one case, a large cyst that led to discontinuing treatment after nine doses. Several members reported that Lupron did not provide the relief they hoped for and suggested alternatives like Daysee birth control, which limits periods to once every three months without the harsher systemic effects. A recurring theme was that every body responds differently, with one member experiencing no side effects and successfully avoiding periods, while others emphasized the importance of weighing the potential physical toll against the desire for symptom relief.

A MyEndometriosisTeam Member

I been on Lupron injection since 4/19/19. My experience has been pretty well I have yet to have a period and I have no hot flashes no anxiety no depression no dry vagina or any side effects. I go for my next injection this Wednesday we shall see what happens next but I am happy with my decision to go on lupron.

May 19, 2019
A MyEndometriosisTeam Member

Have you tried “Daysee” birth control? You get a period once every 3 months. I know you said you are tired of taking pills but Lupron might be a little too strong on your body. My bones started to hurt so much while I was on Lupron. Especially my arms. There was a point when I couldn’t sleep from the pain. Plus hot flashes and anxiety.

May 9, 2019
A MyEndometriosisTeam Member

I had 3 Lupron shots (one shot each month for 3 months). My hot flashes were the worst ☹️ I believe my anxiety level went up as well. What kind of pills are you on now?

May 8, 2019
A MyEndometriosisTeam Member

Ive also tried the Lupron shots and it didn't help me at all. I think I were more irritated. While on lupron I got a huge cyst almost the size of a golf ball under my skin between my legs and that was enough for me to quit after 9 doses. I've been trying to get pregnant for years now n nothing and I'm about to give up.

May 6, 2019
A MyEndometriosisTeam Member

I had the Lupron shot three doses over 9 months. The heat flashes were the worst part for me and it didn’t help me much just had bad side effects. Everyone’s body is different though and I truly hope you get some relief! Hope this helps!

May 2, 2019
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