I have been taking continuous birth control (about 1 period a year) for about 8 years. My endo is very well managed right now with minimal symptoms. However, I really would like to try going off birth control. At some point in the near future we will try to get pregnant - obviously I’ll have to go off BC then at the latest. But it drives me crazy not to know whats going on down there, and I seeing what my cycle is actually like would give me a lot of relief,… read more
I have severe endometriosis and i dont take any BC and dont plan on taking any either.
in my eyes, if endometriosis causes fertility problems anyway, i don't want to prevent my chances of getting pregnant even more by taking BC.
I do have days where im in agony and aching but i fight through it and grab a hot water bottle. i regularly exercise and eat a health diet so whether that helps too i dont know.
I managed my endo symptoms with a progesterone only pill for about a year. At first it was amazing I thought since my cramps were tolerable, but towards the end of the year my symptoms got worse, with intense cramps, heavy periods, and shooting pain down my legs. I decided to go off of BC because I couldn't tell if it was side effects or my body and that really bothered me personally. I went to the hospital and had small cysts on my ovaries and a very small fibroid. Since my symptoms were bad towards the end of using BC, I didn't notice too much of a difference from going off of them. That was in August 2018. My symptoms continued to get worse and had a laparoscopy surgery in December 2018. They were able to take out some of the endo, but had to keep the endo that is in the tissue on my bowel. Since the surgery, my periods are much less heavy and the cramps are slightly better. But I have noticed I have very dull pains more regularly, such as twinging cramps, mild nausea, and mild to severe headaches daily. I always have chronic fatigue. I note that I had these symptoms before surgery, but they were more in cycles and more intense. My surgeon wants me to go on Lupron but I do not want to do this due to the potential side effects. I have been trying to eat healthy, reduce stress, do yoga, meditate, ride my bike regularly to be healthy. But I still have symptoms and also don't really quite know what to do. A family member who had endo said she did it all and the only thing that helped her was a hot water bottle until she had a hysterectomy. For me BC just confused me as to what was the endo and what was the side effects. Everyone is different though. I am still searching for my own answers as I sit here with a dull headache and pinching right ovary. Wish you all the luck. I know it is a journey. Stay strong! <3
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Surgery is really my best option. Otherwise for pain, i have a combination of stuff i do, including a tens unit, heating pad, naproxen, and muscle pain relief creams and patches. Mine mostly hurts at certain points in my cycle.
Thanks for the answers ladies! I have never heard of cycle syncing and didn’t know what visanne actually was, so did some googling. @A MyEndometriosisTeam Member, what did you do when your endo started showing symptoms? And @A MyEndometriosisTeam Member how does cycle syncing work for you?