Does anyone have experience of endo causing symptoms during a confirmed pregnancy?

Does anyone have experience of endo causing symptoms during a confirmed pregnancy?

I’m 6 weeks pregnant, and for 2 weeks I’ve had morning abdominal cramps, bloating, diarrhoea. Sometimes the cramps have felt like uterine cramps which I understand is normal in early pregnancy but now they feel more like bowel cramps. I do have Ulcerative Colitis but I’ve been in remission for 10 years prior to the pregnancy and my bloods don’t show a flare so I’ve been told it’s how the hormones affect me but I’m just so… read more

A MyEndometriosisTeam Member said:

I thought I was having a flare up as my Endometriosis symptoms worsened and it turned out to be pregnancy. I found out when I was about 4weeks pregnant.

It does get better but I haven't had as much surgery as you. The cramping was intense at the start but I think by 12 weeks most of the painful symptoms kind of evened out and I started to understand what the mean and how to deal with them.

I'm currently 7months pregnant and I still question the adesions and how they effect my pregnancy but they keep giving me the all clear saying that pregnancy takes over everything is in the right place. There are other pregnancy pains but I think I deal with them better because I know im carrying a human inside me all the time.

Over my pregnancy I gradually developed sensitivity to certain foods that trigger diarrhea, heartburn,acid reflux and cramping. I've had to stop eating a few of my favorite meals.

I would ask to be refered to an obstetrician if you haven't already been referred. Keep asking questions.

posted 13 days ago
A MyEndometriosisTeam Member said:

Thanks so much @A MyEndometriosisTeam Member! I really appreciate your reply. Congratulations on your pregnancy- I really hope the remainder of your pregnancy is pain free and you are both healthy and safe when it comes to labour.

I know my sis in law and a friend (doesn’t have any health complications) had strong cramps for the 1st 3 months so it sounds like it’s normal but seeing as though everyone is working hard to keep things secret early on nobody really talks about this and google has been my only friend making me worse I’m sure!!

It’s a shame there is such a stigma around miscarriage here (and it making other people uncomfortable to know/talk about) that means we don’t share and I think it puts the mental health of new mums under strain at such an anxiety inducing time!

I didn’t even think about a referral to an Obstetrician- As I’ve been under gastro they told me all about the joint care management they do from 12 weeks where I’ll see the Gastro and Obs Drs jointly so I get the right care and I just assumed there’s nothing I can do til 12 weeks but you’re right, I should just ask- I guess pregnancy is so new I don’t have the same confidence in what’s okay to push but my health is always important to push so I will do :).

My gastro dr and IBD clinic here are so good and I am just waiting on the results of my faecal inflammation- if that’s positive I can take some enemas to help- but I don’t want to use them if it isn’t going to address the problem and mean I take more meds than I need to.

I’ve been off work for 2 weeks now and I’ve just told my boss about the pregnancy so she knows there is this underlying element I can’t change so even though my colleagues will be told it’s an IBD flare up hopefully my boss will know and consider how to cover my workload- I work in a small team and I don’t want my colleagues to feel the impact of this- but luckily they are very supportive too and just want me to take the time I need to be well- even without knowing about the baby. They all know what it has taken for us to even get to trying for a baby so I know they’ll all understand and ultimately now I have to put myself/baby first.

I already had a lot of intolerances pre-pregnancy (gluten/wheat/lactose-severe, garlic/onion -mild) and it seems garlic and onion might be more triggering than they used to so I’m trying to cut those out completely. I keep wondering if I need to consider others like tomatoes/celery- which things are you sensitive to?

Sorry for the rant- I guess this time feels quite lonely and scary so it’s good to get it out!

Amy x

posted 13 days ago
A MyEndometriosisTeam Member said:

Oh and congratulations!

posted 13 days ago
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