Orilissa Treatment?! | MyEndometriosisTeam

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Orilissa Treatment?!
A MyEndometriosisTeam Member asked a question 💭

Saw my doctor today to discuss treatment options after my lappy (May 2019) and continuous hormonal birth control (no periods) have failed to manage my symptoms. Can anyone share their experience with the Orilissa treatment?

posted January 3, 2020
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A MyEndometriosisTeam Member

Hello! I highly recommended finding a specialist who can do an excision! I was on 200 mg of Oriliisa. It really did help my symptoms and I have stage 4! I did experience night sweats and weight gain!

posted January 4, 2020
A MyEndometriosisTeam Member

Orilissa is just as rough as Luprolide acetate (depo lupron). The only difference is orilissa starts the same day you start taking it. The effects dont hit you "hard" until about 14 days in. it causes me, joint pain, back pain, hot sweats, night sweats, headaches, frequent bathroom trips, flares up my ibs, unintentional weight loss, bloating, bad water retention, weird periods or no periods, fatigue, insomnia, dizziness, and cramping but less than a normal period cramp. oh also hair loss.

posted January 3, 2020
A MyEndometriosisTeam Member

Welcome to EndoTeam. I haven't taken Orlissa. Like everything else, I hear good and bad. In Dr. Cook's (local excision surgeon) opinion, it's just a Band-Aid. He believes strongly in excision surgery to rid the body of the disease. Here's a link to my personal resource list. See his Instagram links for more, if you want.

https://www.myendometriosisteam.com/users/5d1ab...

posted January 4, 2020

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