Endo And Other Sensations | MyEndometriosisTeam

Connect with others who understand.

sign up Log in
Resources
About MyEndometriosisTeam
Powered By
Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Endo And Other Sensations
A MyEndometriosisTeam Member asked a question 💭

Warning: personal bits alert
Does endo give you weird sensations near your clitoris/vaginal entrance
Does endo make your bladder/urethra feel odd? What is odd to you?
Do all your bits scream at you after an internal ultrasound?
Do you get lots of white vaginal discharge which is negative to every test?
I know ive had/got stage 3 endo (found and diathermied during abdominal hysterectomy 5 months ago.)
Would i have issues so soon?
Could all these feelings be endo related? Worried about… read more

posted January 29, 2020 (edited)
•
Be the first to like/hug
A MyEndometriosisTeam Member

I had a lot of bladder pain/weird feelings until I had my last surgery. He found that my uterers were encased in endo. Everything was kinda frozen in there. Things are much better now.

As to the vagina opening pain/weird feelings, yes.. until I had pelvic floor PT. It was like an extreme tightness and almost felt like burning at times.

I thought both were infections but tests were always/often negative. Now it makes sense.

posted January 30, 2020 (edited)
A MyEndometriosisTeam Member

I dont need to pee all the time. Probably more that its a litlle slyggish to.let me know if i need to wee. I think its my bladder but it could also be ovary which im thinking is in bladder position. Pain over clitoris is sooo frustrating. Never had this prior to hysterectomy. Seems to be getting worse. Its kind of like super aroused. Did you mean issues got worse after surgery?

posted January 29, 2020 (edited)
A MyEndometriosisTeam Member

Well if you are, we both are. Lol

posted January 31, 2020
A MyEndometriosisTeam Member

Oh yes!!! It was awful.

posted January 30, 2020
A MyEndometriosisTeam Member

I had endo removed from my bladder and urethra during my last surgery... so yes it can! I had to pee all the time and it was painful when my bladder was full.

Also, I get terrible nerve pain into my clitoris and the doctors have said they dont know whats causing it... perhaps it is from endo.

I had issues get much worse after surgery so it could be endo issues or something else flaring up.

I also am considering another surgery to find out but I am hoping to wait a few more years and hopefully get pregnant soon. I wish you well!

posted January 29, 2020

Related content

View All
Has Anyone Been Able To Get Pregnant Naturally After Excision Surgery ? Would Love To Hear Your Stories!
A MyEndometriosisTeam Member asked a question 💭
Does Anyone Have Endometriosis And Hashimoto's?
A MyEndometriosisTeam Member asked a question 💭
Butt And Lower Pain During Sex
A MyEndometriosisTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in