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Endometriosis Medication
A MyEndometriosisTeam Member asked a question 💭

Is anyone taking any medication for their endometriosis? If so can you give some information and also some of the pros/cons of the medication? Thanks

posted June 11, 2020
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A MyEndometriosisTeam Member

I know my endometriosis pain is excruciating during my period and ovulation .... it’s like two different pain , with few days of periods I feel like I’m beaten with a hammer and with a couple of days of ovulation I feel like I have a really painful and deep paper cut in my intestines only on my left lower abd quad ughh😣 I feel like my pain threshold is so high , I never complain about it. I use an electric blanket when I have pain, helps.... now my blanket is broken somehow it doesn’t turn on , so I use iron and put it on low heat... then I can fall asleep. Tyelanol and ibuprofen don’t help ... it’s like drinking water not effective at all 😖

posted June 13, 2020
A MyEndometriosisTeam Member

Welcome to EndoTeam. Are you searching for info on any meds in particular? I've used various forms of birth control. The only one that helped was Nuvaring, but then I had a blood clot in my lungs. So I can't take estrogen anymore.

I never wanted to take Lupron or Orlissa. The side effects scared me and I already have lots of heart disease and osteoporosis in my family. Those meds can increase the risk of those. Also, they sometimes help symptoms but they never treat the endo itself.

I’m 97% pain free since my two excision surgeries, so I’m a huge fan. I’m not saying it’s a cure, but it is the gold standard of treatment and helps the majority of EndoWarriors who have it. I also needed lots of pelvic floor physical therapy and diet changes. Many of us need multiple therapies for healing. I’ll leave a resource list here of stuff about endo I've found helpful over the years. Other users have said it helped too. It covers things from endo basics to excision surgery to diet and wellness. Let me know if I can do anything. Happy to help however I can.

https://www.myendometriosisteam.com/users/5d1ab...

posted June 12, 2020

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