First off, welcome to EndoTeam. I have a bad reaction to gluten too, but mine manifests with pelvic pain and worse brain fog than usual. I do have swelling of my whole body during an endo flare. My second excision surgeon said it was from Pelvic Congestion Syndrome, which is apparently common in EndoWarriors. It's from years of endo damaging nerves and lymph channels. I have a whole long laundry list of stuff I do for it. If you want that, let me know.

Incidentally, I'll share some other endo resources in case you want them. If you haven't joined yet, Nancy's Nook on Facebook (https://www.facebook.com/groups/NancysNookEndoEd/) is a good resource. Lots of articles and a list of excision surgeons.

I’ll leave a resource list I made of stuff about endo I've found helpful over the years. Other users have said it helped too. It covers things from endo basics to excision surgery to diet and wellness. Also, I try to update it but it doesn’t always save changes, so I put updates in the comments. Other users have shared links there too, so check those out. Let me know if I can do anything. Happy to help however I can.

https://www.myendometriosisteam.com/users/5d1ab...