How Do I Hide/conceal My Pain So I Can Have A Semi-‘normal’ Social Life, Especially When Dating (new People)? | MyEndometriosisTeam

Connect with others who understand.

sign up Log in
Resources
About MyEndometriosisTeam
Powered By
Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
How Do I Hide/conceal My Pain So I Can Have A Semi-‘normal’ Social Life, Especially When Dating (new People)?
A MyEndometriosisTeam Member asked a question 💭

I need some advice. I’m 20 and I’ve been living with endometriosis and adenomyosis for as long as I can remember. I’m at the point where I’m socializing more (or will be, once life becomes more pre-COVID like) and I don’t want to have to avoid going out or going on dates anymore because of the wretched pain that comes with every period.

I’ve tried everything but marijuana, and honestly, nothing works, prescription meds, ibuprofen, Advil, Tylenol, heating pads, warm baths, staying hydrated… read more

posted July 22, 2020
View reactions
A MyEndometriosisTeam Member

I would not worry too much about what others think. Unfortunately, there are always people that will judge us , but true friends or partners will come to understand what you are going through. It takes a time and social life is never "normal", but it's worthwhile to take the time to surrounding yourself with who understand. I spend several years in social isolation due to pain/symptoms, but now I have learned to accept my limitations.
Don't let being accept by a man or someone make you feel any less. I understand it's easier said then done. I still struggle with that at times, but your pain is very real and you deserve to be someone who is understanding and accepting of that.
In the past, I have said to people that I have a chronic condition that I don't feel discussing yet, but if I may share in future if our relationship ever reaches that point. For many , it was too blunt and harsh which turned awkward quickly and I never heard from them again. There are few who understood and we are still friends today.
It many be bit of extreme approach, but all we go through there just isn't time to waste between million doctor apts, dealing with chronic pain/symptoms and work. I believe that time is precious and it's so imp to surrounding yourself with people who are positive and supportive.

posted July 24, 2020
A MyEndometriosisTeam Member

That's a great question. Hiding it is just sheer willpower for me, but I got to a point where I couldn't anymore. And the adenomyosis got so bad that no matter how much I tried, people could still tell. It was usually only people who knew me well, but even strangers sometimes picked up on it.

I agree with @A MyEndometriosisTeam Member, you don't owe men anything. You do what you want when you want. And when you're ready to tell one, it's a great litmus test to see if they're worthy of your fabulousness! If they run, they aren't the one.

I'll leave my list of stuff that helps me, just in case there's something you haven't tried yet.
Alternating heating pads and cold packs helps me for the pain. My pelvic floor physical therapist told me that sometimes heat worsens the inflammation, so to use cold too. I have an older version of this heating pad, but I like it because the moist heat penetrates deeper. Also, you have to hold the lever or it shuts off, so it feels safer to me.

https://fsastore.com/Battle-Creek-Thermophore-M...

I alternate Advil and Tylenol too. I had Norco, but I hated how it made me feel and I had to be in absolute agony for hours before I would take it. I like TENS units, but IMHO, don't spend more than $30-40 because many are overpriced and it's bologna that they charge that. Warm Epsom salt baths help too. I also have pelvic floor physical therapy exercises and there’s lots of yoga for endo videos on YouTube. Here's links to two of my favorites.

https://youtu.be/KQdN000kpqM
https://youtu.be/OfO6BZb6A7Q

I also have compounded suppositories of Flexeril (muscle relaxant) and Lidocaine (numbing agent). There’s several different formulas of them, so ask your doc if you want to look into that. When I have to be away from my heating pad, those Thermacare menstrual heating pads (or generic) are helpful. Some users swear by peppermint oil to the belly but it was too strong for me. I never thought to cut it with coconut oil though. This oil blend to the belly helps me.

https://www.mylola.com/products/essential-oil-b...

posted July 23, 2020 (edited)
A MyEndometriosisTeam Member

DrK, thank you so much for that! I’ve always tried to exercise, i dance for a good 30 minutes to an house every morning. I just wish there was a way to not schedule my social life around my periods.

posted July 23, 2020

Related content

View All
How Has The Mirena IUD Helped Your Endometriosis Pain? (What Side Effects, If Any.. Did You Experience From The IUD?)
A MyEndometriosisTeam Member asked a question 💭
I'm About To Start Lupron
A MyEndometriosisTeam Member asked a question 💭
Do You Think Hysterectomy Will Help?
A MyEndometriosisTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in