First of all, welcome to EndoTeam and I'm sorry for what you're going through. As to your question, I'm not a doctor but you deserve answers. I will share based on my experiences and my decades of reading on endo and hope it helps! You could have thoracic endo, which can cause all of those symptoms. They do not necessarily have to correlate with your periods. You can read more here:

https://extrapelvicnotrare.org

I would also make sure your Primary Care Provider orders testing for thyroid problems, autoimmune diseases, vitamin d and b deficiencies and anemia. Those are also common in EndoWarriors and need to be ruled out. Have you had any imaging, like a CT or MRI? I've been in 5 car accidents (none of which were my fault!) and they have messed up my neck. It's common to have tingling down the arms if you have neck nerve impingement. That is just one idea; it needs to be evaluated by your doctor.

I strongly recommend seeing an excision surgeon. They are the most qualified to care for EndoWarriors and there's only a few hundred globally. Nancy's Nook is a great resource for EndoWarriors. There's tons of articles on endo and a list of vetted excision surgeons. It used to be only on Facebook, but they have an independent website now. Not all the data have been transferred there yet, so better to join on FB if you can.
FB: https://www.facebook.com/groups/NancysNookEndoEd/
Website: https://nancysnookendo.com/

I’m 97% pain free since my two excision surgeries, so I’m a huge fan. I did have a hysterectomy (entire uterus, including cervix removed) but kept my ovaries. In my case, that was for horrible adenomyosis. Hysterectomy does not cure endo and neither does removing ovaries. I’m not saying excision surgery is a cure, but it is the gold standard of treatment and helps the majority of EndoWarriors who have it. I also needed lots of pelvic floor physical therapy and diet changes. Many of us need multiple therapies for healing.

This is a resource list I made of stuff about endo I've found helpful over the years. Other users have said it helped too. It covers things from endo basics to excision surgery to diet and wellness. Also, I try to update it but it doesn’t always save changes, so I put updates in the comments. Other users have shared links there too, so check those out. Let me know if I can do anything. Happy to help however I can.

https://www.myendometriosisteam.com/users/5d1ab...

So, endometriomas can recur, but they most often recur because the capsule was not fully and properly removed. My suspicion would be that your surgeon wasn't an excision surgeon, so they might have left the capsule behind and simply drained the endometrioma. This definitely increases the odds the cyst will fill again. Also, if they are not an excision surgeon, they likely left endo behind.

This article might be helpful:
https://centerforendo.com/ovarian?rq=endometrioma

My abdominal MRI showed endo exactly where my surgeon last summer found it- on the posterior cul de sac and new to me, there’s an almond size 11x15mm collection of blood or fluid on my right adnexa ovary- assuming it is either residual damage from the endometrioma excision or, regrowing a new endometrioma in the same spot. Does anyone else know if reoccurrence of endometriomas are common 1 year after surgery and also in the same spot as the last one?

Sending you good vibes for both answers and healing!

Got my bloodwork back no thyroid, B-12 deficiency, anemia or other abnormalities in bloodwork. Still waiting for abdominal MRI. Cervical MRI showed “chronic spondylitic findings” but no explanation of what that really means other than my doctor does not think that’s the sole source of my pain as my pain has been worsening and is severe. I think it’s possible to have thoracic endo but we will see.