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A MyEndometriosisTeam Member asked a question πŸ’­
Eindhoven, NL

I wonder who has them and what their symptoms are. I have kissing ovaries. I was diagnosed last month. And the cysts are hurting. I've recently had my 2nd opinion gyno at an endometriosis center. And she also saw DIE in my bowel. The cysts are literally weighing on me. The left one is 6.5cm, the right one is 4.4cm they sting, sharp pains, I'm having difficulty standing and walking. They're literally pulling my insides downwards. My bowel is stuck.to back of my uterus. And uterus is stuck to… read more

December 19, 2020
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A MyEndometriosisTeam Member

I am so sorry you are going through this. I just had a 10 cm endometrioma removed from my right ovary on December 15th. Mine was discovered in September when I went to the doctor to see if I had a mature follicle for my infertility treatment. Two years ago, I was rushed to the hospital with what they thought was appendicitis and turned out it was an 8 cm endometrioma (surgeon originally thought it was a hemorrhagic cyst)that was on my left ovary that ruptured. It caused me to that caused me to lose my left ovary and fallopian tube. With the endometrioma I just had removed, I would have lower back pain and would use my heating pad a lot. Once in a while my sciatica would act up. During my periods, I would have extremely bad cramping and back pain to the point I would be in tears, heavy bleeding and passing large blood clots. I also had nausea the last two periods I had which was new to me.

My doctor did a robotic assisted cystectomy. Along with the large cyst, my doctor found a lot of adhesions that she removed. I have four incisions in my abdomen. Sleeping is difficult because I love to lay on my sides and back, now I can only lay on my back. The bloating is starting to go down and I have been spotting on and off. I am happy I was able to have the surgery. My doctor says I have severe ovarian endometriosis and that getting another cyst isn't a matter of if and more when will I get another. She said my cyst was a monster and she is surprised I wasn't in more pain. Make sure you tell your doctor how bad your symptoms are. I am hear to talk if you need.

December 28, 2020
A MyEndometriosisTeam Member

Thanks so much for your support. I have told her again. Emailed her, again. She doesn't really go into it. I will again. I will see her on the 4th of January. I doubt she will come up with a plan. I can't believe I have this disease and in the extremity. I can't wrap my head around it. I feel really down.

It sounds like you've been trough a lot!! Especially the rupture sounds horrid! That's my worry! I'm sorry you had to go trough that. πŸ™

December 29, 2020
A MyEndometriosisTeam Member

I'm sorry they aren't doing surgeries right now πŸ˜” that must be really frustrating. When I had one endometrioma I was taking 20mg oral CBD 3x/day plus applying CBD/THC topical gel multiple times a day (the amount of THC was miniscule, didn't cause a high or impaired functioning), + 3,500mg omega 3 daily, & the anti-inflammatory diet & 3,000mg ibuprofen for 3 days before my period & 2 days into it.

But I was still in so much pain during my period I had to take dilaudid for the first two days & then oxycodone for another 2 days & had to go in to the OBGYN every month to get refills on those which was so annoying. The norethindrone did help cut the stabbing pains down, but hormonal suppression also makes the smaller growths harder to visualize during surgery so there's a higher risk of incomplete removal πŸ˜”

I wish I had known about vaginal CBD & THC suppositories at the time so I could have tried those too. I can only imagine what you're going through with having them on both sides and so large 😰 I really wish/hope they'd get you into surgery soon!

December 19, 2020

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