Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEndometriosisTeam Member asked a question 💭
Halesowen, UK

Hi im finding it really hard controlling my enotions one minute angry then crying my eyes out then happy, a proper rollarcoaster..with GnRH it works as a chemical hysterectony so im having menopause, the hot flushes and bight sweats are manageable but being so emotional and stressed sometimes causes flare ups.

January 2, 2021
 · 
Reactions
A MyEndometriosisTeam Member

A hysterectomy is not a cure for endometriosis. Endo is not a disease of the uterus. Excision with a vetted endometriosis EXCISION specialist is our only chance.

If you have adenomyosis, a hysterectomy will cure that. However, remaining endo must be excised.

Have you joined Nancy's Nook Endometriosis Education on FB? Please join and read everything. There is also a list of vetted international endometriosis EXCISION specialists.

Please do NOT have a hysterectomy before joining Nancy's Nook and seeing a Nook surgeon.

January 4, 2021
A MyEndometriosisTeam Member

I had to just go with it when I took Synarel. Your body will acclimate. If it doesn't, you can always not get another injection.

January 2, 2021
A MyEndometriosisTeam Member

A local hospital performed my surgery last year but im no longer with them as the neglected me and my dr referred me to birmingham womens hospital and i am in the care of a proffessor. Im using GnRH prostap to shut down my ovaries (its a chemical hysterectomy) and to see if that reduces pain,which it has,im no longer of regular morphine.i can walk around/bend for alot longer periods of times. I 100% know it wont cure me but at the same time i feel the best i have been in years since taking this injection.
I know i wont be pain free but i will be in alot less pain and will be able to go back to work play with my children take them on walks x

January 5, 2021
A MyEndometriosisTeam Member

Did you have excision?

Please know GnRH agonists are bandaids on endo. They don't prevent growth of the disease.

Who performed your surgery?

January 5, 2021
A MyEndometriosisTeam Member

Hi thank you for your reply.💕Yes i know its not a cure but it is a treatment, by taking GnRH i have noticed a massive improvement, which the gyneo was looking for. I have seen a endometriosis specialist.i had surgery before and it didnt control the horrendous pain for very long.x

January 5, 2021

Related Questions

View All
A MyEndometriosisTeam Member asked a question 💭
Grovetown, GA

A MyEndometriosisTeam Member asked a question 💭
Fitchburg, MA