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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
November 4, 2021
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A MyEndometriosisTeam Member

I did take it and personally probably would not take it again. I experienced severe depression, not much pain relief, vaginal atrophy and who knows what long term since it’s a newer drug. Everyone is different though!
Ask your doctor to review ALL treatment options with you, their pros, cons and risks and benefits if they have not already done this. Wishing you all the best in your journey!

November 9, 2021
A MyEndometriosisTeam Member

Yes I have taken it and didn't care for it. I was on the highest dose 200mg 2x/day. I stopped getting my period. I started to get these weird sensations in my arm/hand, the feeling you get when your arm or leg "falls asleep." I also had joint pain. My doctor then reduced me to 200mg 1x/day (the tingling feeling went away). I think I was on Orlissa for about 1 year. Once I completed treatment, my cycle eventually came back....and so did the pain. To me, Orilissa "lowered endometriosis by lowering estrogen" temporarily. Soon as treatment was finished, back comes the pain. I mean, it "worked" while I took the pill because I didn't get a period and for me, no period means no pain. I am sure there are women who have had success from Orlissa, everybody's experience and interpretation to pain is different. I wish you the very best.

November 6, 2021
A MyEndometriosisTeam Member

Thank you very much!

November 9, 2021
A MyEndometriosisTeam Member

Thank you very much for sharing your experience. Wishing you best as well!

November 6, 2021

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