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Diagnosis Next Step
A MyEndometriosisTeam Member asked a question 💭

6 years ago I started getting worse abdmonial pain and nausea. After couple of Ultrasounds they diagnosed appendicitis and removed it. Following month itself I had the recurring pain. Later went to GI and after U/S the results were normal. One fine day of the same year had severe vomiting and pain in abdomen resulted ER visit. CT, U/S were done and found 4cm haemorrhagic ovarian cyst on left. No medication prescribed so far.

3 years ago, again had the pain which usually starts a week before… read more

posted December 16, 2021
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A MyEndometriosisTeam Member

You are right @A MyEndometriosisTeam Member. I wish everyone should get a chance to diagnose it earlier.

posted December 17, 2021
A MyEndometriosisTeam Member

I think that depends partly on your insurance. Getting a diagnosis of endometriosis can be tough because laporoscopic surgery is required to confirm it. Doctor don't want to do the surgery if they aren't pretty sure you have endometriosis, and they can't confirm that you do without performing the surgery. Really frustrating. After many years of suffering, I was only diagnosed with endometriosis when I developed a very large cyst on my ovary that had to be removed surgically, so the surgeon could see the plaques. Ultrasounds are probably not going to be helpful unless they show something that requires surgery.

posted December 17, 2021
A MyEndometriosisTeam Member

Thanks @A MyEndometriosisTeam Member. Do we need a referral to schedule with Reproductive Endocrinologists? As you mentioned in last 6years none of the Dr uttered the word endometriosis as the suspected cause.

posted December 17, 2021
A MyEndometriosisTeam Member

Are the potential side effects of the birth control pills worse than what you are experiencing now? I know people who get unbearable mental health issues or cardiovascular problems with any hormonal treatment, so it won't work for them, but it might be worth a little weight gain or other relatively minor problems to get out of your current situation. You can always stop taking them if it's too much for you to handle. Or try a progesterone cream so you can tailor to a minimum effective dose? I take Microgestin Fe continuously, and it completely stops my pain. I can't function without it, so it's worth the side effects for me. I tried other oral contraceptives and had whopper migraines. This pill has higher androgen activity and low estrogen activity, so I suspect that's why it works for many women with endometriosis, if that is even what you have. Aurovela is essentially the same. You really need to see any doctor who can diagnose or rule out endometriosis. Not all ob/gyns know much about endometriosis, sadly, so grill them about whether they have done this before. In my experience, fertility specialists know more about diagnosing and treating endometriosis that the average ob/gyn does because it so often causes fertility issues. Good luck to you!

posted December 17, 2021
A MyEndometriosisTeam Member

Are the potential side effects of the birth control pills worse than what you are experiencing now? I know people who get unbearable mental health issues or cardiovascular problems with any hormonal treatment, so it won't work for them, but it might be worth a little weight gain or other relatively minor problems to get out of your current situation. You can always stop taking them if it's too much for you to handle. Or try a progesterone cream so you can tailor to a minimum effective dose? I take Microgestin Fe continuously, and it completely stops my pain. I can't function without it, so it's worth the side effects for me. I tried other oral contraceptives and had whopper migraines. This pill has higher androgen activity and low estrogen activity, so I suspect that's why it works for many women with endometriosis, if that is even what you have. Aurovela is essentially the same. You really need to see any doctor who can diagnose or rule out endometriosis. Not all ob/gyns know much about endometriosis, sadly, so grill them about whether they have done this before. In my experience, fertility specialists know more about diagnosing and treating endometriosis that the average ob/gyn does because it so often causes fertility issues. Good luck to you!

posted December 17, 2021

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