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A MyEndometriosisTeam Member asked a question 💭

Hello, I wanted to speak to people that have been diagnosed and how they knew it was endo. I've been going to the doctor due to lower left abdomen pain that has been going on for a year. Some days it's worse than others but when on my period the pain in my entire uterus and rectum is really extremely bad (for about 5 years now) It doesn't feel like cramps and sometimes I feel like I'm going to faint or like something is trying to come out of my because of the shooting pains but now my lower left… read more

posted March 6, 2023
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A MyEndometriosisTeam Member

It wasn't picked up at my first laparoscopy because the refused to remove adhesions if they had they would have discovered the endometriosis underneath x

posted March 29, 2023
A MyEndometriosisTeam Member

It sure sounds like everything I went through pains and everything certainly sounds like endometriosis, fibroids and adhesions and cysts are common with endometriosis. The only way to definitively diagnose and find endometriosis is via laparoscopy. Mines wasn't found first time as they wouldn't remove the adhesions etc to see the Endometriosis underneath I had to fight a further two years to get them to remove these to find the Endometriosis underneath and then they refused to remove the endo! Years later my endometriosis was picked up on an MRI also but only because it was deeply infiltrative by this point and left that long not all types of endo can be found on MRI, ultrasound , transvaginal etc only way to be sure to pick it up for sure is laparoscopy surgery and removal of any adhesions etc incase your widespread endometriosis is hiding underneath all of this. Hope this helps love Stace 💛

posted March 6, 2023
A MyEndometriosisTeam Member

I hope they find some answers for me when I see the surgeon. She's also an endomitriosis specialist so I'm really hoping they do everything they can to figure out what's wrong with me. I'm tired of the pain. My lower left abdomen has been hurting none stop (not even for a few minutes) for a week now. Before the pain would come and go throughout the week.

posted March 29, 2023
A MyEndometriosisTeam Member

I was also diagnosed via a laparoscopy and they found I had stage 4 endo. The pain was excruciating only when I got my periods but it ended up getting to a point where I was in constant pain as the bleeding just wouldn't go away. I got severe lower back pain as well.

It used to make me go from feeling constipated to feeling like I have the runs every 5 minutes and I couldn't pass bowel movements properly and when I tried to poop, I would almost pass out from the severe pain. Not to mention I was bedridden and had to take unpaid leave from my work as my mental health was so affected. I still have PTSD from the severe pain I used to get. I also recall my left ovary would hurt on top of the endo. I honestly don't know how I got through it.

Finally after about 8 to 10 years I had enough. I kept going to the emergency room and all they would do was put me on morphine, then send me home. I finally spoke up and said I don't want to be on morphine, I came here to get help with this illness by getting to the route of the problem. The nurses booked an appointment for me to see a gyny and for me to have a laparoscopy. I was then told to take primulut as my endo is caused by high estrogen levels and the tablets were progesterone to help level out hormones. It stopped my bleeding and put me in a pre menopausal state where my periods stopped completely. However, primulut is not birth control and my gyny said it can cause defects to the baby of i vecome pdegnant while on them. My hisband had to wear a condom, or exit when having sex as he knew the risks.

I was on primulut for 18 years and noticed my bones were getting weaker from taking progesterone orally so I have recently switched to the mirena and am really happy with it as it does the same thing as the primulut tablets without it affecting my bones. I still get flare ups with my lower back pain but nothing I can't handle.

Ask to be referred to a gyny if you haven't already done so and ask for a diagnosis via laparoscopy or they also call it keyhole surgery as they go through the belly button and make some other small incisions in the stomach to diagnose and treat any endometriosis and cysts.

Then the gyny may suggest hormonal and IUD treatment like they did for me or another type of treatment. Please keep us posted and remember to advocate for yourself. If you want to get a second opinion, don't be afraid to get it.

posted March 28, 2023
A MyEndometriosisTeam Member

Thank you for the answers I really appreciate it. I hope that I can get to the bottom of this but the more I read in endo the more it seems like it's what I have.

posted March 6, 2023

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