Nerve Pain With Endometriosis? | MyEndometriosisTeam

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Nerve Pain With Endometriosis?
A MyEndometriosisTeam Member asked a question 💭

I had shingles at age 28 and was diagnosed with endometriosis shortly before turning 30. I now recognise that I possibly had endo symptoms for most of my 20s.

The nerve pain (limbs/back/face) and facial numbness that I experienced with shingles continued to come back periodically after treatment. I thought the flare ups were due mostly to stress but eventually noticed that they would line up with my luteal and menstrual phases; losing two weeks of my life each month. A bad incident with my… read more

posted March 15, 2023
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A MyEndometriosisTeam Member

Hey there, you sound exactly like me, I'm 18 will be 19 by the time I have surgery, but I have suspected endo because they checked for everything else and couldn't find it, so I decided to push for endo, and they realised I'm not just making it up in my head like they said I was
I had all those symptoms you mentioned, pain killers sometimes help and sometimes dont
But you're not alone with that, girl, I hope you find a way to manage it and keep yourself safe, healthy, guided, and feeling better to do the things you love in life! x

posted March 15, 2023

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