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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Nerve Pain With Endometriosis?

A MyEndometriosisTeam Member asked a question 💭

I had shingles at age 28 and was diagnosed with endometriosis shortly before turning 30. I now recognise that I possibly had endo symptoms for most of my 20s.

The nerve pain (limbs/back/face) and facial numbness that I experienced with shingles continued to come back periodically after treatment. I thought the flare ups were due mostly to stress but eventually noticed that they would line up with my luteal and menstrual phases; losing two weeks of my life each month. A bad incident with my… read more

March 15, 2023
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A MyEndometriosisTeam Member

Hey there, you sound exactly like me, I'm 18 will be 19 by the time I have surgery, but I have suspected endo because they checked for everything else and couldn't find it, so I decided to push for endo, and they realised I'm not just making it up in my head like they said I was
I had all those symptoms you mentioned, pain killers sometimes help and sometimes dont
But you're not alone with that, girl, I hope you find a way to manage it and keep yourself safe, healthy, guided, and feeling better to do the things you love in life! x

March 15, 2023

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