Thank you all so much! I hope your appointment goes (or went) well Mallory-Rene! I unfortunately already had an excision surgery and debating whether to do it again because the doctor I was working with for a second opinion said they could have missed some :( I am just so unsure and don't understand that if 1/10 women have endo, why there are so few treatment options.

I was reading on excision surgery and how it actually had improved pain symptoms on some patients. The article also said you have to a surgeon who is experienced w excision which not many exist? I agree with malorie-Renee. You have to do your own extensive research and be your own advocate. I have my post-op on Tuesday and I’m going to bring this up.

I am 63 and had endo since l was 14. So keep that in mind. Orissa was not an option before my hysterectomy. I take it now l take midol too. Middle works really well and they have a pill that relieves bloating also. Aleve is good also. If non of that works l went to a pain Mgmt Dr and got vicodin. I only used it to break the pain cycle .. l am using a golf ball l roll on to break the pain cycles. This is what works for me. Consult your Dr. I have had a hysterectomy and l still have pain adhesions and there are other hormones that can keep hormones feeding endo. I think endo is trying to invade my bowel and strangling it. I get some test results today and Friday. Have you heard about endosee. It's a new way that the gyno can remove endometriosis in his own office.

Hi Hannah. This was your second opinion doctor?
Did you get anything removed or it was just a clean up? Do you want organs removed or are you planning to have children?

I found a second opinion doctor and he was amazing to the point I changed my doctor at the last minute and had surgery yesterday. I was able to keep my ovaries and cervix. He removed my uterus and tubes.
Ironically my issues weren’t so much endo but adenomyosis which is something I was never diagnosed before. If you have to, get a third opinion.

What dose do they have you on?! And was your dr able to get everything in the surgery? I know for me that he couldn’t get everything, I’m stage 4 & my inflammation was so bad during my surgery that he couldn’t.. I’m on Orilissa but it seems to be working pretty well with me but I still struggle around ovulation time in period time