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A MyEndometriosisTeam Member asked a question 💭
Sydney, FL

I have stage IV deep infiltrating endo and have had 2 excision surgeries. The surgeons know that 17cm of my small interstine is affected by endo but no one seems open to trying to remove it.

June 20, 2024
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A MyEndometriosisTeam Member

Thanks for replying. My symptoms are nausea after every single meal, vomiting after meals, sharp sudden in my stomach, I even lost some weight. The stomach pains have eased since they changed my medication but I'm still nauseas during/after meals and just don't enjoy food any more, which brakes my heart because food is one of my coping strategies.

July 3, 2024
A MyEndometriosisTeam Member

Oh btw. My diagnoses is stage 4 DIE in my small bowel, and female organs. But during surgery, they found it all over my bladder, ureters, kidneys, and abdominal wall (of course).

July 2, 2024
A MyEndometriosisTeam Member

I had a small bowel resection with my hysterectomy. I was having small bowel obstructions monthly with my period. It got to the point I couldn’t eat effectively and had to be on TPN (IV nutrition) for 2 months before my surgery. It’s been a year and a half and my symptoms are starting to come back. I’m 44. They left one ovary to stop full menopause, and now I have to have that taken out to help with symptoms. I’m feeling like this will never end.
Sorry, I wish I could say something more positive.

July 2, 2024
A MyEndometriosisTeam Member

What are your symptoms by the way?

June 21, 2024
A MyEndometriosisTeam Member

Ohh . Why are they not removing it!

June 21, 2024

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A MyEndometriosisTeam Member asked a question 💭
Los Angeles, CA