I have stage IV deep infiltrating endo and have had 2 excision surgeries. The surgeons know that 17cm of my small interstine is affected by endo but no one seems open to trying to remove it.
Thanks for replying. My symptoms are nausea after every single meal, vomiting after meals, sharp sudden in my stomach, I even lost some weight. The stomach pains have eased since they changed my medication but I'm still nauseas during/after meals and just don't enjoy food any more, which brakes my heart because food is one of my coping strategies.
Oh btw. My diagnoses is stage 4 DIE in my small bowel, and female organs. But during surgery, they found it all over my bladder, ureters, kidneys, and abdominal wall (of course).
I had a small bowel resection with my hysterectomy. I was having small bowel obstructions monthly with my period. It got to the point I couldn’t eat effectively and had to be on TPN (IV nutrition) for 2 months before my surgery. It’s been a year and a half and my symptoms are starting to come back. I’m 44. They left one ovary to stop full menopause, and now I have to have that taken out to help with symptoms. I’m feeling like this will never end.
Sorry, I wish I could say something more positive.
What are your symptoms by the way?
Ohh . Why are they not removing it!