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A MyEndometriosisTeam Member asked a question 💭
Inglewood, CA

I'm 35 and have stage 4 severe Endo
I had a huge 9cm chocolate cyst and a few other smaller cysts. Lots of adhesions... my doctor said it was like there was super glue inside (he's very blunt). Since I'm sure I don't want to have kids, he recommended a hysterectomy. Luckily I got to keep both ovaries! But now, what's next?

I understand I won't get my period, but since I'm still producing eggs and hormones I don't know what to expect. I don't know how my cycle is going to feel like. I… read more

March 23, 2025
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A MyEndometriosisTeam Member

Hello, I had Endo for over 20 painful years. I had a total hysterectomy aged 40. Both ovaries, fallopian tubes, cervix and uterus. My gynaecologist recommended this as so many patients who kept 1 or 2 ovaries returned for more surgery again and again due to the continued production of oestrogen from the ovaries - which causes the Endo to grow. I don’t know if I have simply been lucky or whether this worked but at the age of 63, I have continued to move forward with no pain ever since. This is a miracle as I was on Morphine and a cancer drug (Zoladex - which stopped my periods and stopped the pain) to control my periods before the operation. Upon waking up from the operation I no longer experienced pain. My Dr said it was because I removed both ovaries! Drastic as it can lead to osteoporosis of the bones and I didn’t use HRT - in case the oestrogen in it made the Endo grow again. My uterus was in my back passage, my ovaries and fallopian tubes were stuck to my pelvic wall. I had adhesions in the pouch of Douglas. My bowels were stuck together with adhesions, plus many more adhesions everywhere. I was also infertile. I underwent five failed laperoscapies, operations on my bladder and bowels. All this stopped after my total hysterectomy. It may not work for everyone? But, I have been forever grateful for the advice to remove both ovaries.

March 27, 2025
A MyEndometriosisTeam Member

Saving this comment to show my doctor. Its all too familiar. Sending love and strength. Im going into a laparoscopy after a failed hysterectomy. Hoping for the best, you know how it goes.

April 4, 2025

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