I was diagnosed with endo almost a year ago in July during a laproscopic surgery to remove a 5.4 cm dermoid cyst in my ovary. I'm honestly lucky for that cyst (no matter how painful it was) because I didn't even know about endometriosis until they told me I had it. They said they removed it all, checked every nook and cranny, but 11 months later I'm feeling a lot of pelvic pain every day. This has been going on for a couple months as well so I'm pretty sure the endo is already back, but they… read more
It is definitely possible for it to return that quickly and/or for them to have missed some. I went to a well-respected specialist for an excision and while my pain was better, it was still debilitating more often than not. My doctor also insisted they removed everything but I kept going back to them to explain what I was experiencing. About a year after my surgery, they found another endometrioma - my doctor said it isn't common for the disease to return that quickly, but in my case it did. I had another excision surgery after that and my pain significantly improved, so I suspect they might have missed something the first time around. Unfortunately, I've found that I've had to be really persistent in advocating for myself, even with really experienced doctors. I hope this helps and good luck!
Hi, this happened to me as well, about 8 months after my excision surgery. After fighting my doctor to prescribe me an MRI to rule out any physical sources of my symptoms, they found adenomyosis and more endo lesions. Initially, my dr. said she got all of the endo and that my symptoms were likely neuropathic. She tried to prescribe me gabapentin to manage the pain. I have depression and anxiety, so I was uncomfortable with the potential side-effects of gabapentin and wanted to be sure it was neuropathic before taking another potentially mental-health altering prescription. My dr. was insistent that she did a good job and took my requests for a second opinion personally, but finally, in the end, signed off on the MRI, which validated my instincts. I was ready to take gabapentin if the MRI showed that indeed, I had no more endo lesions, but I refuse to mess with my head again, after a terrible time on Visanne. Listen to your body above all else, even when they try to make you think you're making it all up or it's "in your head" or whatever else they might throw at you. I would highly recommend getting a second opinion if that's an option for you, or if not, try to get the necessary scans and tests to rule out endo.
You don’t making this up. It is a chronic illness and your pain is real. If you want to talk with me I am here to listening.