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A MyEndometriosisTeam Member asked a question in Newly Diagnosed group 💭
Newcastle, AU

Hi everyone 🤍 This is my first time posting here so a little nervous.

I was diagnosed with stage 3 endometriosis and had surgery in late August this year.

Over the past several months, I’ve been experiencing quite a bit of hair loss and breakage, with my hair feeling weaker and thinner than usual. I’ve also noticed a change in my underarm body odour, which seems stronger and more onion-like than it used to be.

I’m wondering if anyone else with endometriosis has experienced either of these… read more

7 days ago (edited)
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A MyEndometriosisTeam Member

I have pretty developed stage 4. I am post excision/ hysterectomy but kept my ovaries. Even though I kept my ovaries, I am doing HRT to balance back out Due to endo/ some hormone changes. i have the same seemingly random symptoms- a lot of hair loss and now i notice under armor stink. I never had that before so i do think it could be related!

4 days ago
A MyEndometriosisTeam Member

Stage one and diagnosis/surgery in late April of this year. For me, I started noticing what felt like thinner hair/more breakage when getting off the depo shot since my husband and I are TTC. I felt like it started to mellow out a little after depo cycled out of my body but then noticed again for months after surgery. Only thing I can guess is that the surgery threw my hormones out but I don't honestly know. I've also not mentioned anything to doctors because I didn't know if it was just in my mind or something that was actually happening (as bad as that sounds). I'm a little over 6 months post surgery and while my hair still feels thinner I don't notice it breaking off as much. I hope my hair gets a little thicker like it was before I started the depo shot but I part of me is feeling like this could be the new normal. I hope you find some answers that help and best of luck with your TTC journey!❤️

5 days ago
MyEndometriosisTeam

Welcome, and please don't be nervous — this is such a valid and relatable thing to bring up! 💛 First off, you're absolutely not alone in noticing unexpected body changes after endometriosis surgery.

Both hair changes and shifts in body odour can be connected to the hormonal fluctuations that come with endometriosis and its Show Full Answer

Welcome, and please don't be nervous — this is such a valid and relatable thing to bring up! 💛 First off, you're absolutely not alone in noticing unexpected body changes after endometriosis surgery.

Both hair changes and shifts in body odour can be connected to the hormonal fluctuations that come with endometriosis and its treatment. Here's what's known:

Hair Loss & Breakage
- Endometriosis is closely tied to hormonal imbalance, which can directly affect hair strength and growth cycles
- Post-surgery hormonal shifts can trigger a type of hair shedding known as telogen effluvium, where hair enters a resting/shedding phase due to physical stress
- Treatments like hormonal contraceptives or other hormone-based therapies used for endometriosis can also contribute to hair thinning Body Odour Changes
- Hormonal imbalances associated with endometriosis can alter how the body's sweat glands function, which may change body odour
- Fluctuating oestrogen and progesterone levels can affect the composition of sweat, sometimes making it smell stronger or different than usual
- This can be more noticeable after surgery when the body is recalibrating hormonally Other MyEndometriosisTeam members have shared similar experiences with unexpected skin and body changes, often linking them to hormonal treatments or the condition itself.

It's really great that you're already following up with your doctors and have had blood tests done. A few things worth discussing with them include:

- Hormone level results, particularly oestrogen, progesterone, and thyroid markers
- Whether any current or recent endometriosis treatments could be contributing
- A referral to a dermatologist if hair loss continues, and mentioning your endometriosis diagnosis to them specifically

You're doing all the right things by investigating further. Sometimes it takes a little detective work, but connecting the dots between hormones and these kinds of symptoms is absolutely worth pursuing. 🌿

7 days ago

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