The issue is I’ve tried so many OBs with Kaiser, even drs in different counties. I just keep being told, “it’s most likely endo or adenomyosis” but no one wants to do another surgery and absolutely no imaging because I declined Orlissa and birth control for the time being. I told them my pain is the equivalent of 9+ cm of active labor and both my OB and pelvic pain specialist just said “wow! That’s painful” and then dismissed me again. I don’t know how else to get them to take this seriously.

That’s ridiculous. I’ve been having a lot of trouble first with Kaiser and then with Medi-Cal. Perhaps you can use their own guidelines against them in a way that makes them concerned about liability if they don’t give you a diagnosis. For example, undiagnosed, abnormal uterine bleeding is a contraindication for all hormonal birth control. If you have abnormal bleeding, you can insist on them doing whatever needed to diagnose that so that you can safely take birth control. The risk here is that hypothetically you could have some kind of cancer or other serious disease that could be masked by the birth control and continue to become more serious. And if you find anybody, good, let me know.

It isn’t worth formally diagnosing because there’s no treatment?

That is a preposterous answer to your pain, and incredibly dismissive.

I was also told to take ibuprofen two days before my period to manage the pain, because ‘there is no treatment.’

I had to find an endometriosis specialist on my own, someone who focused solely on endo and did not dismiss my debilitating pain. Since then, I’ve had an MRI that showed deep disease (stage 4 endometriosis) and a laparoscopy. Thank God I was able to take the initiative, inform myself, and advocate for myself.

You should may be try to find another specialist?