Endometriosis

Questions + Answers

Don't see your question? ask question
View:

33 Search Results

0 medium

Cramping

Cramping

Hi, sorry in advance for the long story. I have not been diagnosed with endometriosis as I have been tested all year for other things as I was constantly bloated and had stomach issues. I am only 17 but I got my period when I was 11, since then I've had really painful, usually heavy periods and they started iregular but became regular with accupunture. However I get a sharp pain in my lower right abdomen, I have been sent to the hospital thinking it was an apendicitist but wasn't, and got told it may… read more

0 mini
A MyEndometriosisTeam Member said:

I can't say for sure, but I do know that my endometriosis is on my left side and I have a lot of left side hip issues around the hip joint and the… read more

posted 4 months ago
0 medium

What natural things for endo pain have you tried?

What natural things for endo pain have you tried?

What natural remedies have you tried for Endo and how successful were they? (Ie acupuncture, herbs, diet etc) I tried edible Cbc only marajauna and it didn't do anything for me. I don't want to be high which is why I opted for cbc only. Looking into acupuncture now and diet etc. but not sure if it is worth it...

5 mini
A MyEndometriosisTeam Member said:

I've been having accupuncture 4 the last 2 months and it's def helped. I have stage 4 endo and usually can't move 4 a day each month during my period… read more

posted over 3 years ago
6 medium

Laparoscopy soon

Laparoscopy soon

I'm going for my first laparoscopy in 3 weeks and I am sooo nervous as if pain isn't bad right now what's it going to be like getting my tummy cut open??!! I have fear of the unknown because in various scans the gynae said he can't see my ovaries so is wondering whats going on there to. Im terrified of waking up and the doc saying something horrific like we had to remove everythin or something!! Can anyone explain the procdure eg.pain afterwards, What it's like waking up, how long until you can… read more

9 mini
A MyEndometriosisTeam Member said:

I had my first laparoscopic surgery 3 weeks ago. I was scared they would take out my ovaries because the doctor mentioned he may have to take my ovary.… read more

posted almost 3 years ago
4 medium

Treatment other than birth control?

Treatment other than birth control?

I was just diagnosed a month ago and my gyno is still in the "wait and see" stage of treatment. She wants me to go on birth control but I've been on it in the past and suffered from depression and severe acne because of it. Are there other ways to manage pain (diet, exercise, acupuncture, etc.) that you would recommend?

4 mini
A MyEndometriosisTeam Member said:

Yes @A MyEndometriosisTeam Member orilissa is a hormone blocker. Basically I feel like im in menopause on it.

posted 4 months ago
9 medium

Does anyone get one-sided facial pain with Endo flares?

Does anyone get one-sided facial pain with Endo flares?

When the pain is really bad, it seems to travel up to my face. My acupuncturist thinks that it is TMD due to the stress of my body being in pain for so long. Does anyone else have unusual gripping patterns on one side of their body? I know my pelvic floor is constantly in spasm, but when it gets worse I can feel it travel into my upper abdomen, my hands, my abductor, and my face. My right eye feels dryer and heavier than the left. The facial pain stems from… read more

2 mini
A MyEndometriosisTeam Member said:

Exactly the same all my right side !! I’ve also had brain scan and lots of other scans I’m still non the wiser ??

posted 7 months ago
4 medium

Has anyone had positive experiences/results from the Lupron treatment? I'd love to hear them.

Has anyone had positive experiences/results from the Lupron treatment? I'd love to hear them.

My doctor is encouraging me to try the Lupron treatment for 6-12 months. I'm terrified of the potential side effects. Looking for reasons/stories to compel me to try it.

Also, what other non-medical options work well to manage endo symptoms? Which diets? Which exercises? Acupuncture? I'll try anything before that Lupron treatment.

Thanks,

SJ

0 mini
A MyEndometriosisTeam Member said:

I have been on lupron for over a year had no side of fects managed to gain weight. It gave me a new lease of life & pain free

posted 8 months ago
7 medium

Does anybody have incessant upper back pain in between shoulder blades to the point that you can't sleep?

Does anybody have incessant upper back pain in between shoulder blades to the point that you can't sleep?

My acupuncturist explained to me that inflammation and problems with digestive could be the cause of this back pain. I have done everything from x-ray to MRI; they are normal. My management to the pain is massage; acupuncture yoga and castor oil pad. it never goes away? Perhaps someone has a more effective way of managing that pain?

7 mini
A MyEndometriosisTeam Member said:

Hi, @A MyEndometriosisTeam Member I had had my third surgery about 2 years ago. I had that too even after hysterectomy but I had pelvic physiotherapy;… read more

posted 11 months ago
1 medium

Has anyone tried TCM/Acupuncture for Endo & Adenomyosis?

Has anyone tried TCM/Acupuncture for Endo & Adenomyosis?

My Obgyn has only prescribed pain pills- Vicodin and Percocet for my pelvic pains. I'm thinking about alternative medicine. I've heard Traditional Chinese Medicine (TCM) can help with my Endometriosis and Adenomyosis. But I haven't heard any stories specifically linked with endo or adeno.

5 mini
A MyEndometriosisTeam Member said:

Hey Musical4ever

I'm trying it now and writing a blog with updates if that helps :) https://medium.com/@endingendo214?source=linkSh... (Phone number can… read more

posted 11 months ago
8 medium

Any success with holistic remedies?

Any success with holistic remedies?

Hello, I am 41 years old and was recently surgically diagnosed with moderate (stage 3) endometriosis on June 21. Adhesions were removed along with two ovarian cysts (not PCOS). I have my follow up appointment tomorrow (June 25) and would like to try and discuss any holistic remedies out there in lieu of birth control pills or an IUD.

Has anyone had success with acupuncture, Chinese herbs, pelvic floor therapy or bioidentical hormones to manage endometriosis? I spent many years… read more

6 mini
A MyEndometriosisTeam Member said:

Acupuncture is great, but didn't help my pain much. Pelvic floor PT is great though, highly recommend!

posted about 1 year ago
8 medium

Sharp stabbing pain while walking

Sharp stabbing pain while walking

Hello all, I’m new to this website. I’m 99.9% sure I have endometriosis. I started my period at 8 years old, which is very early. I’ve always had really bad period from throwing up, diarrhea, extremely cramping, back pain, trouble using the restroom when I’m on my period. However, somehow I was able to manage it. Now it’s getting out of control I can’t walk without feeling sharp pains, I refuse to use the restroom because of the pain. My period has been done for a few days and I… read more

9 mini
A MyEndometriosisTeam Member said:

You’re very welcome!
Oh, well, that’ll do it, lol! I hope you are feeling better

posted about 1 year ago
Continue with Facebook
Sign up with your email
Already a Member? Log in