Endometriosis

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Treatment Options

Treatment Options

Hi,
I am going in for my post-op appointment in a few days, and I know my doctor wants to change my treatment. I have endo all over my uterus, colon, and rectum, and they were not able to remove any during my last surgery. I’ve been on several oral contraceptives, but all have made me feel even worse than I do with nothing. The last one made me gain 30 pounds and bleed nonstop the entire time I was taking it. I have read that IUDs can be an option, but I don’t have any experience with that. I… read more

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A MyEndometriosisTeam Member said:

Only thing my mirena has helped is periods are not so heavy - so can see it would be helpful if heavy periods were your issue.. hasn't helped my pain...… read more

posted 2 days ago
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Orilissa

Orilissa

Hello everyone, my obgyn is suggesting I try taking Orilissa to help with endometriosis pain, and that it will shrink the lesions. Is this true? I’ve read it helps with pain but I’ve never heard anything about it possible shrinking or curing endo at all. She wants to avoid a 10th surgery but I’ve tried every other BC method available and nothing has helped except ablation, my last surgery was in 2015. Should I try this pill out or push for surgery?

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A MyEndometriosisTeam Member said:

Have you had excision surgery?

posted 2 days ago
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Has anyone every tried Bioidentical hormone replacement therapy as treatment?

Has anyone every tried Bioidentical hormone replacement therapy as treatment?

Hey ladies quick question has anyone ever tried bio identical hormone replacement therapy as a form of treatment? I’m looking into treatments right now as the pain and symptoms I experience is so awful. I just want relief without losing the potential ability to conceive in the future. Please share your experiences if you have I would love to hear as it is very expensive and insurance won’t cover the costs so I would be paying out of… read more

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A MyEndometriosisTeam Member said:

Thank you sounds like it could be helpful but also maybe not so I’ll have to do more research thank you for your response.

posted 4 days ago
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Laparoscopy diagnosis

Laparoscopy diagnosis

Hi,

I recently had my laparoscopy, after speaking to the doctor he said I had it on my left ovary, pelvic wall he also mentioned it was on my bladder and abdominal wall. Now I’ve read up about the abdominal wall which apparently is rear and you get it if you have a c section which I haven’t had I don’t have any children. Just wondering if anyone else has also been told this? He also mentioned going back in 4 months not too sure if that would be for more surgery I was still a bit out of it… read more

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A MyEndometriosisTeam Member said:

That’s such a tough decision to make ... could you of had children after the doctor cleaned it out if you tried?

posted 4 days ago
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Sex Life and Physical Relationship

Sex Life and Physical Relationship

I can count on one hand the times that me and my boyfriend have had sex in the last year- sad I know.
I just had excision surgery back in May and of course I'm terrified of getting back on the horse... seemed like an appropriate analogy. We have tried once since my surgery after waiting long enough and it still hurt but at the time I wasn't on any type of birth control so we had to use a condom and my fun parts have never agreed with most types. I'm thinking that was the main… read more

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A MyEndometriosisTeam Member said:

@JenniStander- I had stopped checking this for a while but I'm back.
Sex is a tricky part of a relationship when you have endo.
Some things that help:… read more

posted 4 days ago
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What do you suggest to try about chronic pelvic pain?

What do you suggest to try about chronic pelvic pain?

It’s like my pelvic pain is starting to become unbearable and no anti-inflammatory drug is helping. I’ve tried ketorolac, Diflunisal, tramadol, orilissa, I’ve now got the iud but I feel like it’s just getting worse. .

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A MyEndometriosisTeam Member said:

Thanks

posted 5 days ago
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How to stop Orilissa?

How to stop Orilissa?

I’m on my second month of Orilissa and it has been quite a short ride. I have lost ten pounds since starting Orillissa because my anxiety has been so bad that I have trouble eating.
Do I just start taking my bc in place or Orillissa dose?

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A MyEndometriosisTeam Member said:

My doctor just stopped me because of the side effects was horrible for me . . And put me on a different type of birth control

posted 6 days ago
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Partial hysterectomy scheduled

Partial hysterectomy scheduled

Hello! I’m new here and I have a partial hysterectomy scheduled for next month has anyone done this to help with the endo and the pain? She said she may have to take my ovaries but is hoping for a partial. Any advice helps!
Thanks!

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Back pain post Laparoscopy and Endometriosis Ablation

Back pain post Laparoscopy and Endometriosis Ablation

Please help me. I am now 4 weeks post-op. Before Laparoscopy , i had only pelvic pain.I didn't have back pain.Yes, sometimes before period , i did have and sometimes sporadically .But, at that times comes after working for long time standing.And, it was very mild.
I haven't had any problems sitting except for one day during my period and it wasn't so bad.
I had Laparoscopy on June 10. They found endometriosis on uterosacral ligaments or what is called Pelvic… read more

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A MyEndometriosisTeam Member said:

Really Thanks @A MyEndometriosisTeam Member >And really , i don't know why they don't tell us that.Yes, it has moved from front to back. Have you… read more

posted 8 days ago
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Recovery after Laparoscopy

Recovery after Laparoscopy

I am 8 weeks post Laparoscopy ( 2 months post-op).I experience some of my pelvic pain same as prior to Laparoscopy.
I have pain at sacrum especially on prolonged sitting.Still, feel with burning inside at wound sites and feeling of soreness inside.
I walk very slowly due to feelings with my wounds.I have nausea and pelvic pain with any type of food. But, especially with bread.
I read on Nancy's Nook that one may experience same pelvic pain as before Laparoscopy for up to 3 months.
But… read more

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A MyEndometriosisTeam Member said:

Endo-diet is really difficult to me.I am already under weight.I try to decrease intake of inflammatory food but if i removed them totally , nothing… read more

posted 8 days ago
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