Endometriosis

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Chiropractic care

Chiropractic care

Have any of you used Chiropractic care to help with the pain with Endo and if so did it help you?

A MyEndometriosisTeam Member said:

Yes, temp relieve fom back tightness due to endo pain. Nothing long term

posted almost 2 years ago

What treatment has everyone tried?

What treatment has everyone tried?

Off to gynae tonight to sort coil out but wondering what other treatments people have had?

A MyEndometriosisTeam Member said:

The lupron shot helps and I was told that it made my endo clear up a lot before my 2nd surgury. .. BUT if you were to ask me, I would NOT suggest it.… read more

posted almost 3 years ago

Melasma treatment?

Melasma treatment?

Because of all of the hormonal issues, I suffer with terrible melasma all over my face. I've used treatment products with hydroquinone but that has begun leaving white spots. Has anyone had success with any other treatments? I'd like something a bit more natural.

Anyone have experience navigating Kaiser Permanente regarding treatment of Endo?

Anyone have experience navigating Kaiser Permanente regarding treatment of Endo?

I have Kaiser insurance, stage 4 diagnosis and surgeon is stating Kaiser will not do any more surgical treatments and only offered Lupron (which I am not going to do!)

A MyEndometriosisTeam Member said:

Hi. I was wondering what came about the kaiser situation. I currently kaiser and will need surgery.

posted over 2 years ago

What have most you found to be the most effective treatment for endo ?

What have most you found to be the most effective treatment for endo ?

I am currently taking Visanne which has been working pretty well until recently. I am wondering what other treatments have been helpful for others? Does diet actually help with the symptoms and pain?

A MyEndometriosisTeam Member said:

I manage my endo using surgery, natural menstrual products and diet.

I found reducing sugar was a helpful for me in helping with my PMS and menstrual… read more

posted about 3 years ago

What is the point...?

What is the point...?

So in the time I have been on here, I have read a lot of woman talking about their numerous treatments. The common theme I see is that the pain always comes back. Women who have hysterectomies are even complaining of pain!! So honestly, what is the point? Are we all just hoping against hope for a magical cure? Or that maybe we can have some temporary relief. I have yet to see ONE WOMAN say "I had this treatment and now I feel amazing!" It's more like "Well I had this treatment and I… read more

A MyEndometriosisTeam Member said:

I keep recommending a book to everyone. It changed my life and its author became my doctor. Excision surgery by a meticulous specialist AND a holistic… read more

posted over 3 years ago

Has anyone every tried Bioidentical hormone replacement therapy as treatment?

Has anyone every tried Bioidentical hormone replacement therapy as treatment?

Hey ladies quick question has anyone ever tried bio identical hormone replacement therapy as a form of treatment? I’m looking into treatments right now as the pain and symptoms I experience is so awful. I just want relief without losing the potential ability to conceive in the future. Please share your experiences if you have I would love to hear as it is very expensive and insurance won’t cover the costs so I would be paying out of… read more

A MyEndometriosisTeam Member said:

Thank you sounds like it could be helpful but also maybe not so I’ll have to do more research thank you for your response.

posted 5 months ago

Has anyone tried the new endo treatment Elagolix (ORILISSA)?

Has anyone tried the new endo treatment Elagolix (ORILISSA)?

I try to keep up on the latest endo treatments and I have been following this drug development since 2016. I hear it is basically a pill version of Lupron but I am not sure if that is 100% true. Do you guys know if it is basically Lupron and/or have you tried it?

A MyEndometriosisTeam Member said:

That’s all great to hear! My dr seemed so negative about it but he is really pushing a hysterectomy now, so that may be why.

edited, originally posted 11 months ago

Iui/ivf

Iui/ivf

I am wondering about people's success with fertility treatment. My egg quality is high. 3.16 so my RE was excited about that and said any procedure we tried he thinks we'd have a high chance for success. Obviously ivf is expensive. Neither is covered by my insurance. I just wanted to hear anyone's story who went through treatments. Thank you.

A MyEndometriosisTeam Member said:

Your ivf dr should br able to tell u how soon after surgery u can start next ivf cycle

posted almost 2 years ago

Orilissa treatment?!

Orilissa treatment?!

Saw my doctor today to discuss treatment options after my lappy (May 2019) and continuous hormonal birth control (no periods) have failed to manage my symptoms. Can anyone share their experience with the Orilissa treatment?

A MyEndometriosisTeam Member said:

Welcome to EndoTeam. I haven't taken Orlissa. Like everything else, I hear good and bad. In Dr. Cook's (local excision surgeon) opinion, it's just a… read more

posted 15 days ago