I am going in for my post-op appointment in a few days, and I know my doctor wants to change my treatment. I have endo all over my uterus, colon, and rectum, and they were not able to remove any during my last surgery. I’ve been on several oral contraceptives, but all have made me feel even worse than I do with nothing. The last one made me gain 30 pounds and bleed nonstop the entire time I was taking it. I have read that IUDs can be an option, but I don’t have any experience with that. I… read more
Hello everyone, my obgyn is suggesting I try taking Orilissa to help with endometriosis pain, and that it will shrink the lesions. Is this true? I’ve read it helps with pain but I’ve never heard anything about it possible shrinking or curing endo at all. She wants to avoid a 10th surgery but I’ve tried every other BC method available and nothing has helped except ablation, my last surgery was in 2015. Should I try this pill out or push for surgery?
Hey ladies quick question has anyone ever tried bio identical hormone replacement therapy as a form of treatment? I’m looking into treatments right now as the pain and symptoms I experience is so awful. I just want relief without losing the potential ability to conceive in the future. Please share your experiences if you have I would love to hear as it is very expensive and insurance won’t cover the costs so I would be paying out of… read more
I recently had my laparoscopy, after speaking to the doctor he said I had it on my left ovary, pelvic wall he also mentioned it was on my bladder and abdominal wall. Now I’ve read up about the abdominal wall which apparently is rear and you get it if you have a c section which I haven’t had I don’t have any children. Just wondering if anyone else has also been told this? He also mentioned going back in 4 months not too sure if that would be for more surgery I was still a bit out of it… read more
I can count on one hand the times that me and my boyfriend have had sex in the last year- sad I know.
I just had excision surgery back in May and of course I'm terrified of getting back on the horse... seemed like an appropriate analogy. We have tried once since my surgery after waiting long enough and it still hurt but at the time I wasn't on any type of birth control so we had to use a condom and my fun parts have never agreed with most types. I'm thinking that was the main… read more
It’s like my pelvic pain is starting to become unbearable and no anti-inflammatory drug is helping. I’ve tried ketorolac, Diflunisal, tramadol, orilissa, I’ve now got the iud but I feel like it’s just getting worse. .
I’m on my second month of Orilissa and it has been quite a short ride. I have lost ten pounds since starting Orillissa because my anxiety has been so bad that I have trouble eating.
Do I just start taking my bc in place or Orillissa dose?
Hello! I’m new here and I have a partial hysterectomy scheduled for next month has anyone done this to help with the endo and the pain? She said she may have to take my ovaries but is hoping for a partial. Any advice helps!
Please help me. I am now 4 weeks post-op. Before Laparoscopy , i had only pelvic pain.I didn't have back pain.Yes, sometimes before period , i did have and sometimes sporadically .But, at that times comes after working for long time standing.And, it was very mild.
I haven't had any problems sitting except for one day during my period and it wasn't so bad.
I had Laparoscopy on June 10. They found endometriosis on uterosacral ligaments or what is called Pelvic… read more
I am 8 weeks post Laparoscopy ( 2 months post-op).I experience some of my pelvic pain same as prior to Laparoscopy.
I have pain at sacrum especially on prolonged sitting.Still, feel with burning inside at wound sites and feeling of soreness inside.
I walk very slowly due to feelings with my wounds.I have nausea and pelvic pain with any type of food. But, especially with bread.
I read on Nancy's Nook that one may experience same pelvic pain as before Laparoscopy for up to 3 months.
But… read more