Hi everyone, today Shanice and I met virtually and we'd love to meet more of you. If you are interested in joining us virtually Jan 31 at 10PM ET please email (Email address can only be seen by MyEndometriosisTeam users) and I will add you to the guest list. Thanks!

Hello everyone! I hope you are all doing well. Currently, my professor, Dr. Mary Ramos, and I are conducting a research qualitative study on endometriosis. We have received approval from Kennesaw State University's Institutional Review Board (IRB). As a nursing student and an endometriosis patient, I have observed the lack of effective interventions to manage endometriosis-related pain. Our goal of this study is to gain a better insight into the lives of other young adult endometriosis patients… read more

I have been experiencing pain in my right side that extends to my lower back and down my right leg it feels like a burning pain but at the same time it feels like ovulation pain feels on my side . I tried to touch the area it’s sore to the touch as well . I have emailed my gynae I’m waiting for a response . I am going to the GP today this pain is like wow and I’ve been ignoring it for a while now . My side is swollen too.

Hello Beautiful Ladies
I hope that you are doing well. I am looking to collect stories about people's experiences with excision surgeries (in the US) and how they funded them for a project I am working on. If you or someone you know would like to share on this topic, please write back. My email is [[email: [[email: [[email: [[email: [[email: [[email: [[email: [[email: [[email: [[email: [[email: [[email: [[email: [[email: (Email address can only be seen by MyEndometriosisTeam users) if anyone… read more

I have several painful conditions, endometriosis being one of them, my pain is so severe and now been hospitalized twice due to small bowel obstruction. Also they found I have an autoimmune type of esophagitis. My insides are constantly inflamed and my cysts are very painful especially before and during my period and it’s getting worse every month, last two periods I ended up in the ER. I can barley eat due to all the stomach issues and the fatigue is real. Any advice for getting disability??

So many of us deal with pain that would debilitate our lives, if we weren't able to sustain ourselves with some sort of medication to tackle the flair up. But what works the best?

Most of my doctors have put me on Tramadol first and Oxycodone when I explain how Tramadol doesn't do much for my pain. As well as nerve blockers and NSAIDS (Which I limit always to, when needed). HOWEVER, society has a different view on pain medication and I'm wondering if this has made anyone feel uncomfortable… read more

Does anyone know of NGO's or individuals that could help me raise funds to see an endometriosis specialist in Atlanta
I am currently experiencing menorrhagia with big clots, intense lower abdominal pain, bloating/endobelly, pain during urination, and have a clot on my right leg, and conjunctivitis (I don't know it it is related to the endometriosis)
If you do know people that can help please reach me on (Phone number can only be seen by MyEndometriosisTeam users) or (Email address can only be… read more

Does anyone get crazy hot and sweat and then cold sweat with pain? It happens to me every morning once i start moving

For those who have had a hysterectomy could you share your experience
I have had excision, been on Lupron, Depo and every pill under the sun. My options are slim and I’m miserable
Yes I had my surgery with a Nook excision specialist.
Yes I know a hysterectomy is not a cure.
Yes I know I’m young.
Yes I am aware that takes away my option to bear children.
It’s a difficult decision- hence my research and advice seeking.
But I am out of options and I do not want to be miserable the rest of my… read more

Does any body else take pre gablin for pain? X