Endometriosis

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Endometriosis seems to be the culprit?

Endometriosis seems to be the culprit?

I have lower stomach, lower back , and pelvic pain all the time and it worse when I'm on period, which I suffer severe cramps. I have days where pain isn't as bad but never when lt doesn't exist. Have had recurring infections as well yeast and BV. Have had issues for 7 years now. There is pain with any insertion of speculum into vagina and they say vulvodemia for that? Tried to have sex one fime and couldn't due to pain. I always have pain after bowel movements as well.… read more

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A MyEndometriosisTeam Member said:

Ive been hvaing issues and feeling unwell for 7 years and have been constantly going to doctors all that time. No one was able to come up with an… read more

posted 1 day ago
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Treatment Options

Treatment Options

Hi,
I am going in for my post-op appointment in a few days, and I know my doctor wants to change my treatment. I have endo all over my uterus, colon, and rectum, and they were not able to remove any during my last surgery. I’ve been on several oral contraceptives, but all have made me feel even worse than I do with nothing. The last one made me gain 30 pounds and bleed nonstop the entire time I was taking it. I have read that IUDs can be an option, but I don’t have any experience with that. I… read more

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A MyEndometriosisTeam Member said:

Only thing my mirena has helped is periods are not so heavy - so can see it would be helpful if heavy periods were your issue.. hasn't helped my pain...… read more

posted 2 days ago
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Orilissa

Orilissa

Hello everyone, my obgyn is suggesting I try taking Orilissa to help with endometriosis pain, and that it will shrink the lesions. Is this true? I’ve read it helps with pain but I’ve never heard anything about it possible shrinking or curing endo at all. She wants to avoid a 10th surgery but I’ve tried every other BC method available and nothing has helped except ablation, my last surgery was in 2015. Should I try this pill out or push for surgery?

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A MyEndometriosisTeam Member said:

Have you had excision surgery?

posted 2 days ago
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How frequently do you have pain?

How frequently do you have pain?

I know typically endometriosis is described as a period problem but I have pain almost 24/7. Any amount of exercise or activity causes pain for me even just standing or sitting too long ends with me curled up in a ball. Does anyone else have pain this much and do you guys struggle with walking as well?

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A MyEndometriosisTeam Member said:

Jordan tews I’ve been on hormones since June. Usually I get pain a week before my period an during then it
Stops. Well this time. I got extremely bad… read more

posted 3 days ago
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What is your recommendation for experienced endometriosis surgeons in San Francisco or Boston?

What is your recommendation for experienced endometriosis surgeons in San Francisco or Boston?

Hi everyone, I just got diagnosed with stage 4 endometriosis, and I'm trying to get pregnant. So, I'm looking for the most skilled and experienced gynecologic surgeon in San Francisco Bay area or Boston area. I'd appreciate any resources or suggestions on gyn surgeons with experience -performed many surgeries for severe endometriosis. Thanks for any info!

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A MyEndometriosisTeam Member said:

Anytime. Good luck! Also, I've now figured out this whole "recommendations" tab thing, so feel free to read them there on my profile too. I've put in a… read more

posted 4 days ago
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pain during transvaginal ultrasound

pain during transvaginal ultrasound

I recently was diagnosed with suspected endometriosis due to unbearable pain and digestive issues during my period and sharp stabbing pains especially during ovulation. I went today to get a routine pelvic exam and transvaginal ultrasound to see if there is anything else that could be causing this. The pap smear/pelvic exam went fine, but the ultrasound was terrible. The way my ovaries are positioned, she had to push the device quite hard at weird angles to see them. It felt… read more

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A MyEndometriosisTeam Member said:

Yes! Whenever i have to get an ultrasound it makes me cry. They have to apply to much pressure because my ovary is in such a weird spot and angle. The… read more

posted 4 days ago
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Endometrioma

Endometrioma

I have an endometrioma on my right ovary, I have had it for about a year now and I am waiting to be able to afford surgery hopefully within the next 6 months. Anyway I have started feeling sharp pains more frequently on my left side. I’m really worried because I want to protect my good ovary. I can’t afford to see my usual doctor but I was wondering if anyone knows if once you have an endometrioma on one ovary if I have a high chance of getting one on my other ovary?

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A MyEndometriosisTeam Member said:

I don't have an answer for you, but I do have this. I only have one ovary, on my left side, and most of my pain is on the right side. Which there is… read more

posted 4 days ago
8 medium

Endometriosis seems to be the culprit?

Endometriosis seems to be the culprit?

I have lower stomach, lower back , and pelvic pain all the time and it worse when I'm on period, which I suffer severe cramps. I have days where pain isn't as bad but never when lt doesn't exist. Have had recurring infections as well yeast and BV. Have had issues for 7 years now. There is pain with any insertion of speculum into vagina and they say vulvodemia for that? Tried to have sex one fime and couldn't due to pain. I always have pain after bowel movements as well.… read more

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How to get pain meds?

How to get pain meds?

So I had larascopic ablation and cyst removal done about two weeks ago. The dr prescribed tramadol for the pain. Unfortunately I left the script for the meds in my friends care who i cant get ahold of. I had a few pills left from a previous prescription but I'm down to 3 pills. Problem is that suddenly my pain has come back full force and now that I'm back at work I need the meds to get through my shift. I heard some people where able to get meds prescribed through pain clinics. How do I… read more

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A MyEndometriosisTeam Member said:

I can usually call my doctor and he'll send over the script electronically but tramadol is not something that you would want to keep taking the side… read more

posted 5 days ago
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Back pain post Laparoscopy and Endometriosis Ablation

Back pain post Laparoscopy and Endometriosis Ablation

Please help me. I am now 4 weeks post-op. Before Laparoscopy , i had only pelvic pain.I didn't have back pain.Yes, sometimes before period , i did have and sometimes sporadically .But, at that times comes after working for long time standing.And, it was very mild.
I haven't had any problems sitting except for one day during my period and it wasn't so bad.
I had Laparoscopy on June 10. They found endometriosis on uterosacral ligaments or what is called Pelvic… read more

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A MyEndometriosisTeam Member said:

Really Thanks @A MyEndometriosisTeam Member >And really , i don't know why they don't tell us that.Yes, it has moved from front to back. Have you… read more

posted 8 days ago
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