Endometriosis

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Endometriosis seems to be the culprit?

Endometriosis seems to be the culprit?

I have lower stomach, lower back , and pelvic pain all the time and it worse when I'm on period, which I suffer severe cramps. I have days where pain isn't as bad but never when lt doesn't exist. Have had recurring infections as well yeast and BV. Have had issues for 7 years now. There is pain with any insertion of speculum into vagina and they say vulvodemia for that? Tried to have sex one fime and couldn't due to pain. I always have pain after bowel movements as well.… read more

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A MyEndometriosisTeam Member said:

Ive been hvaing issues and feeling unwell for 7 years and have been constantly going to doctors all that time. No one was able to come up with an… read more

posted 1 day ago
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Treatment Options

Treatment Options

Hi,
I am going in for my post-op appointment in a few days, and I know my doctor wants to change my treatment. I have endo all over my uterus, colon, and rectum, and they were not able to remove any during my last surgery. I’ve been on several oral contraceptives, but all have made me feel even worse than I do with nothing. The last one made me gain 30 pounds and bleed nonstop the entire time I was taking it. I have read that IUDs can be an option, but I don’t have any experience with that. I… read more

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A MyEndometriosisTeam Member said:

Only thing my mirena has helped is periods are not so heavy - so can see it would be helpful if heavy periods were your issue.. hasn't helped my pain...… read more

posted 2 days ago
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Sex Life and Physical Relationship

Sex Life and Physical Relationship

I can count on one hand the times that me and my boyfriend have had sex in the last year- sad I know.
I just had excision surgery back in May and of course I'm terrified of getting back on the horse... seemed like an appropriate analogy. We have tried once since my surgery after waiting long enough and it still hurt but at the time I wasn't on any type of birth control so we had to use a condom and my fun parts have never agreed with most types. I'm thinking that was the main… read more

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A MyEndometriosisTeam Member said:

@JenniStander- I had stopped checking this for a while but I'm back.
Sex is a tricky part of a relationship when you have endo.
Some things that help:… read more

posted 4 days ago
8 medium

Endometriosis seems to be the culprit?

Endometriosis seems to be the culprit?

I have lower stomach, lower back , and pelvic pain all the time and it worse when I'm on period, which I suffer severe cramps. I have days where pain isn't as bad but never when lt doesn't exist. Have had recurring infections as well yeast and BV. Have had issues for 7 years now. There is pain with any insertion of speculum into vagina and they say vulvodemia for that? Tried to have sex one fime and couldn't due to pain. I always have pain after bowel movements as well.… read more

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Taking 1/2 of orilissa pill?

Taking 1/2 of orilissa pill?

I skipped a day of medication and today I tried taking half of the pill. I didn’t need to take a nap today. This medication makes me so exhausted. Has anyone else done this on the lower dose 150?

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A MyEndometriosisTeam Member said:

I did that once when i was on my conception pill then when i did that it made me tired and upset my period cycle. Now i am on HRT patches and pills i… read more

posted 6 days ago
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Back pain post Laparoscopy and Endometriosis Ablation

Back pain post Laparoscopy and Endometriosis Ablation

Please help me. I am now 4 weeks post-op. Before Laparoscopy , i had only pelvic pain.I didn't have back pain.Yes, sometimes before period , i did have and sometimes sporadically .But, at that times comes after working for long time standing.And, it was very mild.
I haven't had any problems sitting except for one day during my period and it wasn't so bad.
I had Laparoscopy on June 10. They found endometriosis on uterosacral ligaments or what is called Pelvic… read more

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A MyEndometriosisTeam Member said:

Really Thanks @A MyEndometriosisTeam Member >And really , i don't know why they don't tell us that.Yes, it has moved from front to back. Have you… read more

posted 8 days ago
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Letrozole for both endometriosis and ovarian cysts?

Letrozole for both endometriosis and ovarian cysts?

I currently have the Mirena, which was placed after my laparoscopy in January. Birth control pills were stopped at this time (I was suffering terribly despite taking them leading up to the surgery). I am now dealing with multiple ovarian cysts. I had an extremely painful episode last month which they concluded was most likely a hemorrhagic cyst, and now I have an even bigger cyst that is going to rupture at some point. I go for another follow-up ultrasound in a… read more

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A MyEndometriosisTeam Member said:

Yeah, I would definitely be suspicious about the type of cyst you have. My understanding is if they are endometriomas, or chocolate cysts, they need to… read more

posted 10 days ago
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Anyone have excision surgery only to have their endometriosis return, if so how long did it take to come back?

Anyone have excision surgery only to have their endometriosis return, if so how long did it take to come back?

I had extensive excision surgery recently by a renowned specialist, however I can feel the same pains and symptoms coming back, is it possible for it to come back this quickly after such surgery. Look forward to hearing about your experiences

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A MyEndometriosisTeam Member said:

I thought scans didn’t pick up endometriosis tissue? What kind of scan was it?

posted 15 days ago
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Did Lupron and add back therapy cause you to be exhausted all the time?

Did Lupron and add back therapy cause you to be exhausted all the time?

I am on my 2nd month of Lupron. I am taking norethindrone as my add back. I had the most disgusting night sweats, like changing the sheets every day, changing clothes in the middle of the night every night, my husband couldn't sleep in the bed it was so wet. The docfor put me on Prozac because some antidepressants are also good for night sweats and not flashes. The Prozac made me act very strange, so we switched to Zoloft. Mg question is,… read more

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A MyEndometriosisTeam Member said:

Exercise and healthy eating helps me. To try and motivate myself to exercise it is extremely difficult especially when the fatigue is at its worst. I go… read more

posted 15 days ago
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Excision

Excision

I will be having this surgery soon and I was wondering if anyone tried to conceive after surgery?

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A MyEndometriosisTeam Member said:

I had surgery in 2011 - been trying to conceive since 2007. Still no baby. Going through my first cycle of IVF now. I have a son from my first marriage… read more

posted 16 days ago
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