Endometriosis

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Endometriosis seems to be the culprit?

Endometriosis seems to be the culprit?

I have lower stomach, lower back , and pelvic pain all the time and it worse when I'm on period, which I suffer severe cramps. I have days where pain isn't as bad but never when lt doesn't exist. Have had recurring infections as well yeast and BV. Have had issues for 7 years now. There is pain with any insertion of speculum into vagina and they say vulvodemia for that? Tried to have sex one fime and couldn't due to pain. I always have pain after bowel movements as well.… read more

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A MyEndometriosisTeam Member said:

Ive been hvaing issues and feeling unwell for 7 years and have been constantly going to doctors all that time. No one was able to come up with an… read more

posted 1 day ago
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Side effects of lupron and orlisa

Side effects of lupron and orlisa

I hear allot about these drugs and have heard that the side effects are horrible. I recently had larascopy and the next step is likely going to bc e one of these meds. Why are the side effects so bad? I looked at the side effects listed and most of them seem to consider eith menopause pause due to the way the meds work but are there other effects to be weary of?

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A MyEndometriosisTeam Member said:

thx guys, i can't believe this medication is still approved for use in the us or anywhere else

edited, originally posted 8 days ago
9 medium

Laparoscopy diagnosis

Laparoscopy diagnosis

Hi,

I recently had my laparoscopy, after speaking to the doctor he said I had it on my left ovary, pelvic wall he also mentioned it was on my bladder and abdominal wall. Now I’ve read up about the abdominal wall which apparently is rear and you get it if you have a c section which I haven’t had I don’t have any children. Just wondering if anyone else has also been told this? He also mentioned going back in 4 months not too sure if that would be for more surgery I was still a bit out of it… read more

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A MyEndometriosisTeam Member said:

That’s such a tough decision to make ... could you of had children after the doctor cleaned it out if you tried?

posted 4 days ago
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pain during transvaginal ultrasound

pain during transvaginal ultrasound

I recently was diagnosed with suspected endometriosis due to unbearable pain and digestive issues during my period and sharp stabbing pains especially during ovulation. I went today to get a routine pelvic exam and transvaginal ultrasound to see if there is anything else that could be causing this. The pap smear/pelvic exam went fine, but the ultrasound was terrible. The way my ovaries are positioned, she had to push the device quite hard at weird angles to see them. It felt… read more

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A MyEndometriosisTeam Member said:

Yes! Whenever i have to get an ultrasound it makes me cry. They have to apply to much pressure because my ovary is in such a weird spot and angle. The… read more

posted 5 days ago
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Pain after surgery

Pain after surgery

I had laparoscopic surgery about a week and a half ago, and I still cannot pee without being in terrible pain. It doesn’t feel like a UTI to me; it’s a pain that starts around my bellybutton and then kind of fans outward from there and lasts a few minutes. But it’s bad enough that I can’t stand or breathe very well. I did call my surgeon, but he wasn’t available and the nurse I talked to told me not to worry about it. But I’m worrying anyway. Have any of you ever experienced anything like… read more

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A MyEndometriosisTeam Member said:

I had pain, but only for 2-3 days after at the most. I would call again if you don't feel like it is improving.

posted 5 days ago
8 medium

Endometriosis seems to be the culprit?

Endometriosis seems to be the culprit?

I have lower stomach, lower back , and pelvic pain all the time and it worse when I'm on period, which I suffer severe cramps. I have days where pain isn't as bad but never when lt doesn't exist. Have had recurring infections as well yeast and BV. Have had issues for 7 years now. There is pain with any insertion of speculum into vagina and they say vulvodemia for that? Tried to have sex one fime and couldn't due to pain. I always have pain after bowel movements as well.… read more

8 medium

What do you do for birth control while on Orlissa?

What do you do for birth control while on Orlissa?

I have my post-lap exam on Thursday and I think my doctor plans to prescribe me Orlissa. I've heard Orlissa works by regulating hormones, therefore it won't work as well if you are also on hormonal birth control (which I am). I suspect I will be taken off the bc pill and put on Orlissa for ~6 months ---but what do I do for birth control for 6 months?

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A MyEndometriosisTeam Member said:

I think it's actually the opposite. I think Orilissa makes a combination pill not work bc Orilissa cuts down on the estrogen in your body. Like Kate… read more

edited, originally posted 6 days ago
3 medium

How to stop Orilissa?

How to stop Orilissa?

I’m on my second month of Orilissa and it has been quite a short ride. I have lost ten pounds since starting Orillissa because my anxiety has been so bad that I have trouble eating.
Do I just start taking my bc in place or Orillissa dose?

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A MyEndometriosisTeam Member said:

My doctor just stopped me because of the side effects was horrible for me . . And put me on a different type of birth control

posted 7 days ago
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Back pain post Laparoscopy and Endometriosis Ablation

Back pain post Laparoscopy and Endometriosis Ablation

Please help me. I am now 4 weeks post-op. Before Laparoscopy , i had only pelvic pain.I didn't have back pain.Yes, sometimes before period , i did have and sometimes sporadically .But, at that times comes after working for long time standing.And, it was very mild.
I haven't had any problems sitting except for one day during my period and it wasn't so bad.
I had Laparoscopy on June 10. They found endometriosis on uterosacral ligaments or what is called Pelvic… read more

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A MyEndometriosisTeam Member said:

Really Thanks @A MyEndometriosisTeam Member >And really , i don't know why they don't tell us that.Yes, it has moved from front to back. Have you… read more

posted 8 days ago
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I need your help..any other advice would be very much appreciated.. <3

I need your help..any other advice would be very much appreciated.. <3

Okay, I have a constant vicious cycle of UTIs and yeast infections or sometimes just one or the other. The problem...I have tried everything under the Sun to stop these infections from occurring and I mean everything. This has been going on for about 2 years like this non-stop.

I exercise a lot...maybe I need to take a shower IMMEDIATELY after exercising (sometimes I can be in the gym for 2-3 hours..I know I am crazy lol), so maybe… read more

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A MyEndometriosisTeam Member said:

I know you posted this awhile back but I had 6 UTI’s within 7 months back several years ago. Assuming yours are being confirmed and treated with… read more

posted 10 days ago
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