Had surgery on Monday. I had already been diagnosed with endo so we thought that's what would be found this time.. i had zero endo but had extensive adhesions due to scar tissue. They involved my intestines, my left kidney, and my left ovary.
I felt good in the days following surgery but as the week has gone on i feel worse and worse. I've had alot of nausea off and on, a headache, some weird pains in my abdomen, and a good bit of bleeding. I tried telling myself that my body was… read more
I have had it for a few years now and it has really gotten bad the last few months. I'm wondering if it is more internal than doctors originally thought. Struggling to find a treatment that actually helps. I've been on a couple iuds and a couple birth control pills but nothing has really helped. Currently on loloestrin.
I haven't had laparoscopy yet but my doctor is putting me on Orilissa, claiming she needs to shut everything down before she can do the surgery. I am worried about the side effects but she is also putting me on Duavee which is for treating symptoms of menopause. Has anyone else found Duavee helpful during the basically induced menopause from Orilissa? (other info- I am 23 and have never undergone any endo treatment besides hormonal BC when I was a teenager)
Does anyone else here have an issue with hair loss (chunks of hair coming out when brushing, brushing hands through hair, washing and etc) and acne from endo, from being off the pill for a while and/or also after surgery? I've noticed my skin has changed so much and I've always had clear smooth skin and also my hair has been coming out in chunks and thinning out a bit now, my hair is usually thick. Just curious to see if anyone else has had this issue or is currently going through it… read more
Hi. Just joined. Have endo for 20+ yrs. Burned out 20 yrs ago and lasered 2 yrs ago. Deal w/ PCOS as well. Always thought my issues were related to that because of ruptured cysts. However, my D is so severe went to ER for dehydration. Take The Pill every day (no week off) to not have period to keep endo at bay. 20 yrs ago also did medication to throw me into menopause. GYN says 2 yrs ago endo was eveywhere in my body, lasered what she could. Usual endo symptoms: Chronic Diarrhea, Stomach upset,… read more
Hi, I’m new to this! I’m looking for a bit of advice. I’ve never formally diagnosed with Endo. However, I suspect there is a possibility that I have it. My mother has it, and I have a lot of the typical Endo symptoms. When i first started my period, it was a monster, complete with a full on 7 day heavy bleeding, irregular, vomiting mess. Lots of cramping, lower back pain and cloudy urine. I’ve spent the last 10 years on birth control pills, but recently 6 months ago… read more
Since my first period, they’ve always been extremely heavy, lasting ~10-12 days. I remember having crippling pain just before and throughout the entirety of my period that would often have me curled up in bed or the bathroom floor, I even fainted in school a couple of times trying to tough it out. A heating pad and 4 ibuprofen every 4-6 hrs were the only things that helped manage my pain but never… read more
Does anyone else have this condition? I went the doctor for a follow up after being in the ER. And after talking about the latest trip to the ER. My exam I was diagnosed with Pelvic Floor Dysfunction. The doctor said it was caused by body’s reaction to the pain from my sever cramps.
The doctor said that my pelvic floor muscles are too tight. (Which I didn’t know was possible.) Because of the natural gaurding respones to pain. And the doctor perscribed me… read more
Any one else experienced really bad GI pain, bloating, constipation around ovulation day? I have not been diagnosed yet, my appt with a specialist is in May but for the second month I experience horrific stomach pain about when I ovulate. I have been eating well so that shouldn't be a trigger ( low fod map, gluten free, dairy free,etc)
Also, I have cramping but it's hard to tell if it's IBS and bloating related or if this is all caused by something else
A few questions... my daughter is 16 and has had a laser lapraoscopy which helped a little. She tried the IUD which was bad. She’s on the pill now with no period breaks. She misses high school one or two days a week. Has anyone taken Orilissa? We are in the Twin cities and the OB/GYN we tried to get into is only taking surgical candidiates and I don’t think she is one. Any help would be appreciated!!!