Endometriosis

Questions + Answers

Don't see your question? ask question
View:

1122 Search Results

0 medium

Has anyone taken gabapentin & what side effects did you have

Has anyone taken gabapentin & what side effects did you have

I'm on a new pill called Gabapentin 100 mg for nerve pain. I am always scared of new pills bc of all my stomach issues & constipation.
Any feedback would be appreciated Thanks

0 mini
A MyEndometriosisTeam Member said:

It depends how many a day you take & what the dosage is. What dose did you take?. I am on the lowest 100 mg & it is not helping & will have… read more

posted about 6 hours ago
9 medium

Sitting Problem

Sitting Problem

I am day 6 post-op . I suffer from having difficulty sitting due to strange feeling at my sacrum .
My appointment with my doctor will be on June19.
I just read in the report that Endo was removed from utero-sacral ligament
Has any one experienced this post-op? Is this normal?
What is the cause of this?

7 medium

I’m curious if anyone has a retroverted uterus?

I’m curious if anyone has a retroverted uterus?

Hi, I’m new to this! I’m looking for a bit of advice. I’ve never formally diagnosed with Endo. However, I suspect there is a possibility that I have it. My mother has it, and I have a lot of the typical Endo symptoms. When i first started my period, it was a monster, complete with a full on 7 day heavy bleeding, irregular, vomiting mess. Lots of cramping, lower back pain and cloudy urine. I’ve spent the last 10 years on birth control pills, but recently 6 months ago… read more

4 mini
A MyEndometriosisTeam Member said:

I was told I had one last year but I never heard much more about it to be honest. I don't think it's related to endo, I think they said it just happens… read more

posted about 2 months ago
1 medium

Struggling to find the right treatment

Struggling to find the right treatment

Hello everyone!
I'm new to this site and happy to be able to hear everyone's stories. I was diagnosed based on symptoms for Endometriosis about ten years ago. I've been on Norethindrone for 7 years and for the most part have had good luck. I have a hard time losing weight with it but no other prominent side effects. The only issue is breakthrough bleeding/periods. It used to occur only if I didn't take the pill at the EXACT same time each day (which is so hard to remember)… read more

1 mini
A MyEndometriosisTeam Member said:

StaceySmithCreech

Where did you go and to whom for the exicison surgery? If I am going to get surgery I want to make sure they know what they are doing!… read more

posted about 2 months ago
7 medium

Unilateral vs. Bilateral Oophorectomy

Unilateral vs. Bilateral Oophorectomy

Has anyone out there had either a unilateral or bilateral oophorectomy in conjunction with excision/ablation, possibly in their mid to late 30s or early 40s? Have you been happy with your results? Have you had symptoms return? In October of 2016, I had an excision/ablation surgery, felt great for 5 months, and then my symptoms returned. Currently I’ve been on Lupron for almost 2 years and actually do really well, except for the surges towards the end of one shot and then… read more

7 mini
A MyEndometriosisTeam Member said:

@StaceySmithCreech thank you for sharing all of that! Wow, this disease sure is a trade off of things to deal with, that’s for sure! Your answers have… read more

posted about 1 month ago
3 medium

Unsuccessful Surgery

Unsuccessful Surgery

I've been in chronic pain for 1 year and 10 months. It started on the left side of my pelvis and had spread to sometimes include my chest. I have had pain during and after sex; painful bowel movements and gas; pain in my back, hips, legs, and ribs; and before I was on my previous hormone treatment, had shortness of breath and felt like there was a band around my rib cage. Met with my GYN for post op appointment yesterday, and she said she didn't find any endometriosis. Before surgery, she… read more

5 mini
A MyEndometriosisTeam Member said:

@StaceySmithCreech I had surgery by someone at fertility clinic. So yes I feel I need to see a specialists!

posted 13 days ago
1 medium

Orilissa and Duavee

Orilissa and Duavee

I haven't had laparoscopy yet but my doctor is putting me on Orilissa, claiming she needs to shut everything down before she can do the surgery. I am worried about the side effects but she is also putting me on Duavee which is for treating symptoms of menopause. Has anyone else found Duavee helpful during the basically induced menopause from Orilissa? (other info- I am 23 and have never undergone any endo treatment besides hormonal BC when I was a teenager)

1 mini
A MyEndometriosisTeam Member said:

Thanks for your help. I know everyone reacts differently to these things so it's hard to trust sweeping opinions from people who are all in different… read more

posted about 2 months ago
7 medium

Ablation?

Ablation?

Has anyone had an ablation for endo pain? Im reading conflicting things. I feel like in running out of options here and tnks could potentionally help with the pain. Im trying not to get to excited becore i talk to my doc. Thougts?

4 mini
A MyEndometriosisTeam Member said:

I had ablation surgery twice and I feel it has made my symptoms worse. I ended up having my tubes tied and wish that I would have had a hysterectomy.… read more

posted 3 months ago
4 medium

Nerve pain in legs

Nerve pain in legs

Has anyone had issues with extreme pain starting from the lower back and shooting down the legs to their feet? I am in so much pain and I'm not sure what to do or who to go to anymore.

4 mini
A MyEndometriosisTeam Member said:

Thank you!!!

posted 2 months ago
6 medium

diagnosis

diagnosis

Hi ladies, My ObGyn suspects I have endo, but no diagnosis yet. Sonogram didn't show anything, and so she has given me the choice of doing a laparoscopy or just trying birth control to see if symptoms are addressed. Is there no way to diagnose other than surgery?
Thanks so much - this is all new and daunting, not to mention frustrating that I don't definitively know what is the source of so much pain.

thanks,
Fransi

0 mini
A MyEndometriosisTeam Member said:

Laparoscopy is the only way to diagnose endo. They can make assumptions from ultrasounds but laparoscopy confirms. I spent many years using birth… read more

posted 3 months ago
Continue with Facebook
Sign up with your email
Already a Member? Log in