Hiya,

Could you please give me your honest advice/thoughts? Currently at the end of my tether and don't know who else to turn to.

Since I was 14 (now almost 26) I have seen various different doctors and a gynaecologist being told all sorts of different things but all of them have said they suspect I have endometriosis. With my current doctor she is the best one I have seen to date and is really clued up on the disease and says she is 100% sure I have it and all my symptoms match, there's… read more

I was just wondering how everyone was examined to see whether or not you have endo?

Because How can you have a Pap smear or vaginal exam if it's so unbearably painful for you ? I went to a gyno and they kept saying the only way to tell was through that kind of exam . Is that true ? Is there a way that they can do an ultrasound to find the lesions ? Can they put you to sleep during your vaginal exam ? Because it caused me so much pain to the point of almost passing out......

I'm seeing my second obgyn after a strong of bad doctors, she told me my history sounds like endometriosis and there's a cyst with debris on my ultrasound results. She's put me on visanne and now I'm just adjusting to the hormones, I don't get my period anymore which helps a lot. I go for a follow up ultrasound in a month, she says if the cyst disappears because of the visanne she's 100% confident it's Endo even without the surgery to confirm.

I've been on a mission to determine what's wrong… read more

I have almost every symptom of endometriosis. Painful cramps (on and off my period) since before I even started my period at age 11. When I was younger I went to a couple different doctors and they tried to downplay my pain and told me it’s normal and I need to get used to it. I only had one doctor that did diagnose me with PCOS based on hormone levels but never did any imaging. As an adult I have gone to two different Gynos and one told me I “probably” have it and did a vaginal ultrasound. He… read more

Hello, I wanted to speak to people that have been diagnosed and how they knew it was endo. I've been going to the doctor due to lower left abdomen pain that has been going on for a year. Some days it's worse than others but when on my period the pain in my entire uterus and rectum is really extremely bad (for about 5 years now) It doesn't feel like cramps and sometimes I feel like I'm going to faint or like something is trying to come out of my because of the shooting pains but now my lower left… read more

I have experienced for 4 yrs..leg pain..rectum, back and lower left abdomen pain as well as bloating and sometimes constipation..sometimes nausea and diarrhea. All this with heavy cycles. The cysts I had 2 yrs ago they say aren't seen now on ovaries. They said I have an enlarged uterus and the only way to see anything is with laparoscopy. What should I do?

Hello I am new here and wanted to get some opinions on my situation.( I apologize for any gross details) I’ve had bad pain in my periods ever since I was 12 and was put on birth control at the age of 15 to try and help with pain and heavy bleeding. Was told at the age of 16 I have IBS. I’m now 26 and have been experiencing issues urinating and sharp pains I can’t explain in my pelvis that even radiates to my buttock sometimes. I will be walking and it will shoot down my leg and I can’t move for… read more

I’ve recently been diagnosed with endo through a cystoscopy. I’ve been living with UTI like symptoms since 2019. Does anyone else have experience with it being inside the bladder? I was told I had ‘painful bladder syndrome’ and my urologist completely ignored the possibility of it being anything else. I packed my suitcase in March and went to Latvia where I was hospitalised and had a bladder biopsy which confirmed endometriosis. I didn’t even know what endometriosis was before the diagnosis, so… read more