Hiya,
Could you please give me your honest advice/thoughts? Currently at the end of my tether and don't know who else to turn to.
Since I was 14 (now almost 26) I have seen various different doctors and a gynaecologist being told all sorts of different things but all of them have said they suspect I have endometriosis. With my current doctor she is the best one I have seen to date and is really clued up on the disease and says she is 100% sure I have it and all my symptoms match, there's⦠read more
Thanks ladies for your help. I have an appointment on Saturday morning with a different doctor and I'm going to request a referral to a gynae.
I was just wondering how everyone was examined to see whether or not you have endo?
Because How can you have a Pap smear or vaginal exam if it's so unbearably painful for you ? I went to a gyno and they kept saying the only way to tell was through that kind of exam . Is that true ? Is there a way that they can do an ultrasound to find the lesions ? Can they put you to sleep during your vaginal exam ? Because it caused me so much pain to the point of almost passing out......
A blood test is being developed outside that US, that will hopefully bring a less invasive option to testing for Endo
Fingers crossed it comes soon- these laparoscopic surgery inst always the best⦠read more
I'm seeing my second obgyn after a strong of bad doctors, she told me my history sounds like endometriosis and there's a cyst with debris on my ultrasound results. She's put me on visanne and now I'm just adjusting to the hormones, I don't get my period anymore which helps a lot. I go for a follow up ultrasound in a month, she says if the cyst disappears because of the visanne she's 100% confident it's Endo even without the surgery to confirm.
I've been on a mission to determine what's wrong⦠read more
Had a laparascopy done 2017 October and there was no relief at all. I'm on visanne pills now, and I feel so much better
I have almost every symptom of endometriosis. Painful cramps (on and off my period) since before I even started my period at age 11. When I was younger I went to a couple different doctors and they tried to downplay my pain and told me itās normal and I need to get used to it. I only had one doctor that did diagnose me with PCOS based on hormone levels but never did any imaging. As an adult I have gone to two different Gynos and one told me I āprobablyā have it and did a vaginal ultrasound. He⦠read more
Try Slynd birth control!!!
I wish I had a better story to share. After trying to conceive for 4 years naturally (we weren't in a hurry), we finally started working with a fertility specialist. It was really hard for me to⦠read more
Hello, I wanted to speak to people that have been diagnosed and how they knew it was endo. I've been going to the doctor due to lower left abdomen pain that has been going on for a year. Some days it's worse than others but when on my period the pain in my entire uterus and rectum is really extremely bad (for about 5 years now) It doesn't feel like cramps and sometimes I feel like I'm going to faint or like something is trying to come out of my because of the shooting pains but now my lower left⦠read more
I hope they find some answers for me when I see the surgeon. She's also an endomitriosis specialist so I'm really hoping they do everything they can to figure out what's wrong with me. I'm tired of⦠read more
I have experienced for 4 yrs..leg pain..rectum, back and lower left abdomen pain as well as bloating and sometimes constipation..sometimes nausea and diarrhea. All this with heavy cycles. The cysts I had 2 yrs ago they say aren't seen now on ovaries. They said I have an enlarged uterus and the only way to see anything is with laparoscopy. What should I do?
@A MyEndometriosisTeam Member You're so welcome! I'm glad you have decided to have the surgery and get the results and answers you need! I totally understand how scary it is thinking of going into⦠read more
Yes! For me they are very common and one of the symptoms that led to them doing a laparoscopic for determination of endometriosis. Since i was not near premenopausal age
Hello I am new here and wanted to get some opinions on my situation.( I apologize for any gross details) Iāve had bad pain in my periods ever since I was 12 and was put on birth control at the age of 15 to try and help with pain and heavy bleeding. Was told at the age of 16 I have IBS. Iām now 26 and have been experiencing issues urinating and sharp pains I canāt explain in my pelvis that even radiates to my buttock sometimes. I will be walking and it will shoot down my leg and I canāt move for⦠read more
I would. Especially if you want to have a baby. I dealt with the pain for so long and my doctor always said itās probably endometriosis and never confirmed. By the time I did, it was so severe and I⦠read more
Iāve recently been diagnosed with endo through a cystoscopy. Iāve been living with UTI like symptoms since 2019. Does anyone else have experience with it being inside the bladder? I was told I had āpainful bladder syndromeā and my urologist completely ignored the possibility of it being anything else. I packed my suitcase in March and went to Latvia where I was hospitalised and had a bladder biopsy which confirmed endometriosis. I didnāt even know what endometriosis was before the diagnosis, so⦠read more
Yes @A MyEndometriosisTeam Member, my bladder was back to normal and have no more bladder problems since. I still have bowel issues but that's another endo story
I hope Visanne works for you. It's⦠read more