Endometriosis

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Orilissa and Duavee

Orilissa and Duavee

I haven't had laparoscopy yet but my doctor is putting me on Orilissa, claiming she needs to shut everything down before she can do the surgery. I am worried about the side effects but she is also putting me on Duavee which is for treating symptoms of menopause. Has anyone else found Duavee helpful during the basically induced menopause from Orilissa? (other info- I am 23 and have never undergone any endo treatment besides hormonal BC when I was a teenager)

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A MyEndometriosisTeam Member said:

Thanks for your help. I know everyone reacts differently to these things so it's hard to trust sweeping opinions from people who are all in different… read more

posted about 2 months ago
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Struggling to find the right treatment

Struggling to find the right treatment

Hello everyone!
I'm new to this site and happy to be able to hear everyone's stories. I was diagnosed based on symptoms for Endometriosis about ten years ago. I've been on Norethindrone for 7 years and for the most part have had good luck. I have a hard time losing weight with it but no other prominent side effects. The only issue is breakthrough bleeding/periods. It used to occur only if I didn't take the pill at the EXACT same time each day (which is so hard to remember)… read more

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A MyEndometriosisTeam Member said:

StaceySmithCreech

Where did you go and to whom for the exicison surgery? If I am going to get surgery I want to make sure they know what they are doing!… read more

posted about 2 months ago
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diagnosis

diagnosis

Hi ladies, My ObGyn suspects I have endo, but no diagnosis yet. Sonogram didn't show anything, and so she has given me the choice of doing a laparoscopy or just trying birth control to see if symptoms are addressed. Is there no way to diagnose other than surgery?
Thanks so much - this is all new and daunting, not to mention frustrating that I don't definitively know what is the source of so much pain.

thanks,
Fransi

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A MyEndometriosisTeam Member said:

Laparoscopy is the only way to diagnose endo. They can make assumptions from ultrasounds but laparoscopy confirms. I spent many years using birth… read more

posted 3 months ago
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sacroiliac joint and endometriosis

sacroiliac joint and endometriosis

Does anyone suffer with sacroiliac joint pain and endometriosis?

I've had laparoscopy surgery 3 weeks ago and by hip/buttocks/lower back is still very sore. Im wondering now is it something else linked to endometriosis or should I relax and take it as I'm still recovering..

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A MyEndometriosisTeam Member said:

Thank you :) this really helped xx

posted 2 months ago
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Just had a lap, and no endo?

Just had a lap, and no endo?

I've been experiencing severe pelvic pain since I was about 9 (for 12 years now), to the point I collapse and have fainted a few times. Endometriosis runs on both sides of my family but I've always been dismissed by doctors. In September I finally had enough after getting into a car accident because the pain hit suddenly and caused my swerve into oncoming traffic. I found a new doctor, and the first appointment he said it sounds like endo. Ultrasounds, endoscopy and colonoscopy all… read more

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16 ur old daughter

16 ur old daughter

A few questions... my daughter is 16 and has had a laser lapraoscopy which helped a little. She tried the IUD which was bad. She’s on the pill now with no period breaks. She misses high school one or two days a week. Has anyone taken Orilissa? We are in the Twin cities and the OB/GYN we tried to get into is only taking surgical candidiates and I don’t think she is one. Any help would be appreciated!!!

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A MyEndometriosisTeam Member said:

posted 2 months ago
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laparoscopy

laparoscopy

Hi Ladies,

I am so happy I found this community. I have read so many of your posts and I wish none of you/us had to go through this, but thank you so much for sharing, it really helps!

After over a year of going between doctors, I have been diagnosed with endometriosis (as definitively diagnosed as one can be without laparoscopic surgery). Here is my timeline:
-For the last 4-5 years, my periods have been increasingly cramp-y and painful, after many years of previously pain-free periods
-I tried… read more

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A MyEndometriosisTeam Member said:

He seems to be highly recommended. I recovered really well and they did a major clean up. He also has a book that focuses on endo and treating it as… read more

posted 3 months ago
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Treatment suggestions

Treatment suggestions

Hello everyone,

I just had laparoscopic surgery 2/22 and my gynecologist has found adhesion/ endo in my uterus. Some were able to be removed however there are still smaller ones still there. The gynecologist told my parents I would need the shot I’m guessing (lupron) which will put me in a menopause state. My question is what treatments have you sought out? Is the shot worth it or should I look into alternatives I’m already on birth control and have been for years.

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A MyEndometriosisTeam Member said:

Itlwhitebtrfly

Thank you so much for your input.

posted 4 months ago
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Constipation - IBS or Endo?

Constipation - IBS or Endo?

Hello,
I am very new here. Just went to my Dr on Thursday due to recent heavy painful periods, clotting and ovary cramping all the time. Ultrasound was fine so she mentioned it could be a factor of Endo. I also have struggled with chronic constipation for 3 years. I've had all the GI tests and RX and diets and nothing ever clears it up and I've never been able to find what triggers it.
Have any of you had constipation with Endo nearly every day?
Have you had any treatment that helps with… read more

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A MyEndometriosisTeam Member said:

Hi Alicia,
Thanks for your message. That's good to know. I do eat a pretty low-fod map diet, drink, tons of water, exercise. No dairy, etc.

I have been… read more

posted 3 months ago
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Ovarian cyst

Ovarian cyst

After lots of abdominal pain again after laparoscopy in sept I had a ultrasound 2 weeks ago and found I had a Hemorrhagic Cyst on my right ovary is this a endometriosis thing?? Xx

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A MyEndometriosisTeam Member said:

https://www.sciencedirect.com/science/article/p...

posted 4 months ago
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