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This is my first post here, but I am at a loss at this point. I started struggling with severe endo pain over a year ago and got a definitive diagnosis last summer when they did a laparoscopic incision surgery. The surgery and birth control they put me on after did not reduce my pain levels at all, and so my doctor recommended Depot Lupron.
A month ago I got my third 3 month shot, and while I love the endo pain relief, I’m finally realizing the Lupron shots are the cause of significant other… read more
I find yoga helpful but also too much pelvic opening during it can set the pain off for me. I have also recently changed my diet quite a lot, I’ve gone dairy free, sugar free and almost alcohol free… read more
The hot flashes I had on Lupron were severe compared the ones I have now: post- hysterectomy/ ovaries removed. I compare it to having Pitocin that causes labor artificially and makes the contractions… read more
Hey ladies! I will be having my left ovary removed soon. I keep becoming septic and in and out of the hospital. My Doctor would like me to start on Orilissa after my surgery. Can I hear your stories about this medication?
I was on the max dose for the max length of time for Lupron and Orilissa. With both of them, my period eventually stopped (which was beneficial for me because with no period means no pain or symptoms… read more
Hi ladies. I am new here and i guess relatively new to the world of endo. I went to the ER about 2 month's ago for pain that wasnt going away. They found a large cyst on my left ovary after multiple tests. I found an amazing dr and he did excision surgery a month ago. He said i have stage 4 endo. He removed the cyst and the endo he could but unfortunately alot remains. I am starting Lupron on Monday (dr also stated hes putting me on an "add on" medication as well). Any positive experiences on Lu… read more
I am a 51 yr old female experiencing lower abdominal pain, bloating, fullness,more gas than normal, mote weight gain, if i move too fast the sudden sharp pain stops me in my tracks. I have had a… read more
I read that the depo shot can have a rash side effect which is apparently called the depo rash. How common is that? I keep learning of new side effects as I research and I'm trying to figure out if I should stay on this type of hormone treatment. Thank you
Tell me your experiences! On Tuesday we had a phone consult with an endo surgeon finally and she said she’d want me on lupron 2-3 months pre-op (surgical wait time is 4-6 months here). The following day our RE cancelled our IVF retrieval as the maturity of the follicles was not synchronized. We have a consult with him in a few weeks to plan for the next attempt, but he mentioned briefly that he would maybe try me on lupron for a few months before an egg retrieval also.
Thanks for the info kachoo and thanks for sharing your experience Jillian! It sounds awful… and this is what I was worried about. I feel kind of stuck… can’t get pregnant because of endo, failed… read more
Thanks!!Yes it’s exactly the same.Actually i m not on lypron because i m from Europe so we dont have lupron here but i m on elityran which is exactly the same think(like lupron or Zoladex)Do you mean… read more
I took the lower dosage which is all I could tolerate. It helped me with my rectovaginal pain with bowel movements and midline pelvic pain a lot. However, the night sweats, hot flashes were really… read more
I have had 6 Lupron shots and they have been worth it. Pain free with minimal side effects. Don't rule it out- it doesn't work for everyone but it could work for you. I have felt better than I have in… read more
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