Endometriosis

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Has any treatment helped anyone

Has any treatment helped anyone

Has any treatment or pain relief helped anyone I've had 3 operations, been on injection twice, had mirena coil in and been on the pill numerous amount of times nothing seems to help. I'm on morphine, buscpan and paracetamol nothing seems to help :(

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A MyEndometriosisTeam Member said:

Thank you I'll find out and see what the docs say X

posted about 3 years ago
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Pain relief

Pain relief

I really need some advice on what can help with my pain, I'm so tired of being in pain, I currently take tramadol and morphine, as I am allergic to codine, ibuprofen, asprin, memanefic acid and ibuprofen gel, I also use a hot water bottle, I was just wondering if there was anything else I could try, doesn't have to be tablet, I am willing to try anything, I just want this pain to go

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A MyEndometriosisTeam Member said:

I know this advice isn't always what people want to hear, especially if you're in a lot of pain, but recently I started exercising a lot more and… read more

posted over 2 years ago
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How can I get pregnant if it's too painful to have sex?

How can I get pregnant if it's too painful to have sex?

Hi ladies,

I stopped taking Visanne a week ago to try to get pregnant. The pain came back full swing. Everything hurts. There's no way I would even let my husband near me.

I've spoken to my doctor several times and he tells me to take an @advil. @Advil does NOT work. Nothing helps with the pain except morphine (which knocks me out) and Visanne (which I can't get pregnant on).

In desperation, I started taking Visanne again. It will take time to work again but… read more

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A MyEndometriosisTeam Member said:

@A MyEndometriosisTeam Member thank you SO much for your suggestions. I'll ask my doctor about Naproxen. I've actually read about that condition as… read more

posted about 2 years ago
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Itching rashes skin

Itching rashes skin

3 Days post Laproscopy to remove endometrioma, ovary and tube. After my shower today my daughter noticed I have a red blotchy rash on the backs of my legs. Not itchy at all so far. It has spread up I to inner thighs and butt. I'm guessing it's some kind of reaction just think its weird it's taken this long to appear. Maybe to anesthetic, morphine or t3s? Anyone else have experience with this and know what it was?

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A MyEndometriosisTeam Member said:

That is truly possible.

posted 11 months ago
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Sharp stabbing pain while walking

Sharp stabbing pain while walking

Hello all, I’m new to this website. I’m 99.9% sure I have endometriosis. I started my period at 8 years old, which is very early. I’ve always had really bad period from throwing up, diarrhea, extremely cramping, back pain, trouble using the restroom when I’m on my period. However, somehow I was able to manage it. Now it’s getting out of control I can’t walk without feeling sharp pains, I refuse to use the restroom because of the pain. My period has been done for a few days and I… read more

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A MyEndometriosisTeam Member said:

You’re very welcome!
Oh, well, that’ll do it, lol! I hope you are feeling better

posted about 1 year ago
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Is anyone else in pain 24/7?

Is anyone else in pain 24/7?

I’ve been in pain 24/7 for two years. I am trying to preserve my fertility, or at least my uterus, so trying all the available options (including 2 laparoscopies) before having a hysterectomy. I take 90 mg of morphine a day with Percocet for breakthrough pain, which still doesn’t offer enough relief for me to start working again. Does anyone else experience this much pain 24/7?

I just feel kinda alone sometimes.

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A MyEndometriosisTeam Member said:

Are there any diet resources you recommend? I've seen positive feedback from people who followed an "endo diet."

posted over 1 year ago
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The downside to Codeine (UK Painkiller)

The downside to Codeine (UK Painkiller)

Okay so I don’t know if anyone else is prescribed Codeine 30mg (2 every 4-6hours) but is it me or is it the worst painkiller. I can take 2 and in an hour I’m asleep or the opposite I’m wide awake and can’t sit still. It either makes me like I have done some energy drug or I’m comatosed??. Then to add to that where credit is due it stops the pain but then it makes me so constipated, I’m drinking and nothing helps then I have to take laxatives because I have gone 3 days… read more

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A MyEndometriosisTeam Member said:

Is that a form of Valium suppository?

posted over 1 year ago
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Shock of early pregnancy endo pains and already on meds advice needed!

Shock of early pregnancy endo pains and already on meds advice needed!

Had endo way over 5 years has 3 laser surgery to remove endo, had 6-12 months pretty much pain free before the return, returned in November and awaiting next surgery worst pain ever had on slow release morphine and narproxen and paracetamol and bed bound 80% of the time. To my shock iv found out I'm very early pregnant, but so many concerns, I've been using a tens unit for relief of pain that's been working well, 10mg Sr morphine every 12… read more

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A MyEndometriosisTeam Member said:

The only thing u can take while pregnant is tylenol unless otherwise advised by your dr.

posted over 1 year ago
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Has anyone experienced severe stomach pain, vomiting & diarrhea that required hospitalization?

Has anyone experienced severe stomach pain, vomiting & diarrhea that required hospitalization?

At least twice a year since I was 16 (now almost 26) I have major "flare ups" as I call them. It starts early in the AM, I wake up & begin vomiting every 30 mins, having severe pain in my stomach, have diarrhea or very frequent, painful bowel movements. It's unbearable and I usually end up in the emergency room where they give me IV fluids, gravol, buscopan and morphine until the flare passes. They always do a… read more

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A MyEndometriosisTeam Member said:

Yes!!! I am lying in hospital right now and losing my mind... just found this forum. I was diagnosed 3 months ago and thought they had got rid of it all… read more

posted almost 2 years ago
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Severe back pain

Severe back pain

I was told I have endometriosis in July. Everyday has been a struggle because I am awaiting an op. I have horrendous back pain everyday, a dull ache and sometimes shooting pains up my spine. I take morphine and dihydrocodeine everyday. Can anyone tell me where the endo is likely to be with those symptoms? Many thanks.

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A MyEndometriosisTeam Member said:

I have horrible back pain... i had extensive endo. .. found a lot on pouch of douglas.... this has to be the only reason my back hurts... had 2 ortho… read more

posted almost 2 years ago
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