Endometriosis

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Is anyone else experiencing insomnia/restless legs/night mares from Primolut N (Norethindrone)?

Is anyone else experiencing insomnia/restless legs/night mares from Primolut N (Norethindrone)?

Ive been on Primolut N (Norethindrone) for almost a month and in the beginning i was getting headaches all the time ( i normally never have headaches) and my mood is still all over the place. Except from these side effects I'm also having a lot of trouble sleeping, i get the worst nightmares and i wake up a couple of times a night. I can't find any information about this in the listed side effects (from… read more

Any one heard of a research treatment Elagolix in combination with Estradiol/Norethindrone Acetate?

Any one heard of a research treatment Elagolix in combination with Estradiol/Norethindrone Acetate?

I have been asked if I want to be apart of this research study. I am needing help with deciding what to do. I am he's aren't because o don't know to much about it and I am just getting more confused the more I try to resurch.

A MyEndometriosisTeam Member said:

Did ypi end up taking part...i have started the screening process...i am canadian

posted over 1 year ago

Norethindrone and Lupron

Norethindrone and Lupron

Hi my doctor started me on Lupron and Norethindrone last Thursday to treat my Endo. Has anyone else been treated for their Endometriosis with Lupron injections and 5mg of Norethindrone? Did it help your symptoms at all? Also did you have a lot of side effects from them?

A MyEndometriosisTeam Member said:

I have done both together three times. It helped stop my period which was amazing because a typical period for me lasts weeks and is extremely painful.… read more

posted over 2 years ago

Norethindrone

Norethindrone

Is anyone here on norethindrone? I've been on for nine months now and the only relief I'm getting from it is that it's helped the flow of my periods a bunch. But other than that, it ain't doing diddly squat. Has anyone found relief while taking it? Should I stay on it?

A MyEndometriosisTeam Member said:

Im about to start provera tablets 3 x a day

posted over 2 years ago

Experiences with Norethindrone?

Experiences with Norethindrone?

I started Norethindrone yesterday, after excision surgery in August made my symptoms so much worse. My doctor insisted the only treatment is hormone therapy. I did not want to do hormone therapy, but the pain is such that I need to do something until I can find another option.
I read a ton of reviews yesterday from people who have experience with taking it, and the vast majority of them are horrible. HORRIBLE.
I do not want to take it anymore but feel somewhat out of options.

A MyEndometriosisTeam Member said:

This is the progesterone only one. I refused to take any sort of birth control.

posted 12 months ago

Norethindrone

Norethindrone

So my doctor started me on norethindrone alone to take for a few months until surgery and im really nervous about it. Its one of the few things ive not tried over the last fourteen years. Has anyone taken this alone to manage pain? Did it help and What side effects did u have?. Im also scared because i just started weight watchers and have already lost 11 lbs and i dont want to gain it back. Any experiences or thoughts would help Thanks:)

A MyEndometriosisTeam Member said:

P.s. I also took it as add back therapy while on Lupron. 5 mg a day, but it's hard to say what it did to me then bc I got so many side effects from read more

posted over 3 years ago

Norethindrone

Norethindrone

Hey guys I'm on "the mini pill" (norethindrone) and have been for about 7 months now. The only things it's helped is lighten the flow of my periods, made them a little more predictable, but it's also given me bad acne, increased sex drive and sore/tender boobs here and there. And also weight gain and in creased appetite and tons of bloating.

Has anyone else been on this pill and had side effects? And what side effects have you had??

A MyEndometriosisTeam Member said:

I take mine once a day. I've been taking mine since August of last year. By suppress do you mean to stop your cycle all together or lighten the flow and… read more

posted almost 3 years ago

Does norethindrone cause all over body aches?

Does norethindrone cause all over body aches?

I’ve been on norethindrone for a month and have been having all over body aches that just won’t go away. I had aches like this for about a week a while after my most recent surgery, but they have come back. Do you think it’s the norethindrone or the endometriosis that causes the all over aches? Pain meds help to a point, but I need some new strategies. What do you do to get through it? So exhausting!!

A MyEndometriosisTeam Member said:

Interesting point I just stopped norethindrone because it caused migraines for me and I think depression

posted almost 2 years ago
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