Hi. I know it sucks what doctors can tell us. Things like: "you are overreacting" or "just try a new pill" are sometimes the nicer things we hear. Like when I was 17, and a Doctor told me that I should get pregnant soon. Or when a Gyn ask me: "Don't you have a REAL problem?" after I told her my symptoms.
I also had an ultrasound and was told everything is fine. "You have at least tree cysts, and I can't see your left ovary because of fluid. But that is perfectly okay.… read more
Has anyone out there had either a unilateral or bilateral oophorectomy in conjunction with excision/ablation, possibly in their mid to late 30s or early 40s? Have you been happy with your results? Have you had symptoms return? In October of 2016, I had an excision/ablation surgery, felt great for 5 months, and then my symptoms returned. Currently I’ve been on Lupron for almost 2 years and actually do really well, except for the surges towards the end of one shot and then… read more
I have been having such unbearable pain lately, seriously considering an oophorectomy (removal of the ovaries) or go for the hysteroctomy. I last laparascope I removed my tubes but nothing seems to work. Has anyone received any relief after these two procedures?
My doctor has asked repeatedly about pains during sex however my pains are at random and usually feel like...you know those baseball bats with nails sticking out of the end - if there was such thing as a retractable one then that's what its like for me - randomly the nails are out and other times it's just a painful pressure closer towards either hip but on the inside of me. I don't feel any of that during sex, not be too personal but I have a pretty high sex drive however when… read more
For the past few months I have had almost no appetite. Im typically only able to eat at dinner time. Ive also noticed that smelling foods causes nausea and loss of appetite. I keep losing weight so my pelvic pain doc referred me to a new GP but I cant get in until the end of May. All of my bloodwork came back normal and Im definitely not pregnant. Im just wondering if anyone else has experienced something like this and how you overcame it? I love food and I want to eat so badly but I… read more
Hey guys I was wondering you had (or ever experienced) and overactive bladder while you're on your period? I seem to have to go pee way more often than usual when I'm on my period. Anyone else experience this??
I actually have two questions:
1) Has anyone had both Depo-Provera and a laparoscopy, and if so, what are your opinions about the effectiveness of the two? And effectiveness aside, did you feel that one was more worthwhile than the other, in terms of quality of life, how long the treatment interrupted… read more
Im still awaiting to have my diagnostic surgery and am wondering what everyone’s symptoms were prior to diagnosis, as well as tips and tricks for surgery day as I’m absolutely nervous for the day to come because I’m terrible with needles and the thought of surgery! And wondering if anyone has overactive pelvis muscles as part of endometriosis?
My OBGYN said that this was our last resort. I was in indescribale pain and went from Stage 3 to Stage 4 in just a few months and my pelvic cavity was like a bomb went off. I was great for the first few months just like normal again. A little before Thanksgiving all the pain came back. How many have had to go back for more excisions or other surgeries? Trying to figure out what I… read more
Hi endo warriors
Is anyone using or has used the drug Visanne before? How are you coping with the side effects? Mine are so severe especially the bloating, weight gain, constipation, dry eyes and fatigue?
How have you overcome the side effects?