Endometriosis

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Orilissa and Duavee

Orilissa and Duavee

I haven't had laparoscopy yet but my doctor is putting me on Orilissa, claiming she needs to shut everything down before she can do the surgery. I am worried about the side effects but she is also putting me on Duavee which is for treating symptoms of menopause. Has anyone else found Duavee helpful during the basically induced menopause from Orilissa? (other info- I am 23 and have never undergone any endo treatment besides hormonal BC when I was a teenager)

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A MyEndometriosisTeam Member said:

Thanks for your help. I know everyone reacts differently to these things so it's hard to trust sweeping opinions from people who are all in different… read more

posted about 2 months ago
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How long did it take period to stop on depo provera?

How long did it take period to stop on depo provera?

I got my 2nd shot and am still bleeding, this week was even worse than the 1st shot...I am running out of options. My medical insurance doctor wont do surgery yet, as she wants me to do lupron or orilissa. I don't want to, as these cause bone loss and possible other issues, as well. Anyone had the same dilemma?

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A MyEndometriosisTeam Member said:

I bleed on the toilet a lot, i think releasing the pelvic muscles causes the blood to come out. We tense the muscles i think so the blood get stuck

posted 23 days ago
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Struggling to find the right treatment

Struggling to find the right treatment

Hello everyone!
I'm new to this site and happy to be able to hear everyone's stories. I was diagnosed based on symptoms for Endometriosis about ten years ago. I've been on Norethindrone for 7 years and for the most part have had good luck. I have a hard time losing weight with it but no other prominent side effects. The only issue is breakthrough bleeding/periods. It used to occur only if I didn't take the pill at the EXACT same time each day (which is so hard to remember)… read more

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A MyEndometriosisTeam Member said:

StaceySmithCreech

Where did you go and to whom for the exicison surgery? If I am going to get surgery I want to make sure they know what they are doing!… read more

posted about 2 months ago
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16 ur old daughter

16 ur old daughter

A few questions... my daughter is 16 and has had a laser lapraoscopy which helped a little. She tried the IUD which was bad. She’s on the pill now with no period breaks. She misses high school one or two days a week. Has anyone taken Orilissa? We are in the Twin cities and the OB/GYN we tried to get into is only taking surgical candidiates and I don’t think she is one. Any help would be appreciated!!!

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A MyEndometriosisTeam Member said:

posted 2 months ago
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Orilissa. Whats the verdict?

Orilissa. Whats the verdict?

Hi Ladies

This question is for any and all the women on here taking Orilissa.

Its been on the market since August 2018. Im interested in reviews. Any feedback, advice or warnings to share?

I know its practically Lupron in pill form but do you think Lupron in pill form helps control the dose and allowing us ladies something we can just stop taking is better than waiting for the injection to run itself out in our system?

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A MyEndometriosisTeam Member said:

I finally tried Orilissa for 2 weeks and so far it is doing wonders for my pain. Since taking the Orilissa I am able to not have pain when having a… read more

posted 5 months ago
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Has anyone tried the new endo treatment Elagolix (ORILISSA)?

Has anyone tried the new endo treatment Elagolix (ORILISSA)?

I try to keep up on the latest endo treatments and I have been following this drug development since 2016. I hear it is basically a pill version of Lupron but I am not sure if that is 100% true. Do you guys know if it is basically Lupron and/or have you tried it?

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A MyEndometriosisTeam Member said:

That’s all great to hear! My dr seemed so negative about it but he is really pushing a hysterectomy now, so that may be why.

edited, originally posted 3 months ago
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Orilissa

Orilissa

I was recently diagnosed after having laparoscopy 3 weeks ago to help confirm. I am now awaiting my appointment scheduled for the 17th to insert the Mirena, IUD. I am no longer able to safely use oral contraceptives due to the harm they started putting my body and hormones in. The IUD is my only option i learned but was told id possibly be a good candidate by my GYN adding in the Orilissa to alleviate my symptoms , too.

I learned about it initially working at my pharmacy. & becoming eager to know… read more

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A MyEndometriosisTeam Member said:

I'm nervous about the iud as it is & have hopes on the Orilissa as i feel its one of my only hopes to relieve my pain & symptoms. Id literally… read more

posted 2 days ago
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Has anyone tried Zoladex?

Has anyone tried Zoladex?

I was instructed by my insurance to try this Zoladex implant before they will try me on Orlissa. I feel like I cycle more often and the pain is more intense...

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Orilissa

Orilissa

For those who have taken Orilissa, how has finishing the pill affected you? Any symptoms? Endo symptoms more than before? Thank you

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A MyEndometriosisTeam Member said:

Thank you! Turns out I had a cyst on my fallopian tube that was twisted and pulling everything together, pain has been much better since! hope you are… read more

posted 17 days ago
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