Endometriosis

Questions + Answers

Don't see your question? ask question
View:

50 Search Results

4 medium

Orilissa

Orilissa

Hello everyone, my obgyn is suggesting I try taking Orilissa to help with endometriosis pain, and that it will shrink the lesions. Is this true? I’ve read it helps with pain but I’ve never heard anything about it possible shrinking or curing endo at all. She wants to avoid a 10th surgery but I’ve tried every other BC method available and nothing has helped except ablation, my last surgery was in 2015. Should I try this pill out or push for surgery?

4 mini
A MyEndometriosisTeam Member said:

Have you had excision surgery?

posted 2 days ago
5 medium

Side effects of lupron and orlisa

Side effects of lupron and orlisa

I hear allot about these drugs and have heard that the side effects are horrible. I recently had larascopy and the next step is likely going to bc e one of these meds. Why are the side effects so bad? I looked at the side effects listed and most of them seem to consider eith menopause pause due to the way the meds work but are there other effects to be weary of?

5 mini
A MyEndometriosisTeam Member said:

thx guys, i can't believe this medication is still approved for use in the us or anywhere else

edited, originally posted 7 days ago
8 medium

What do you do for birth control while on Orlissa?

What do you do for birth control while on Orlissa?

I have my post-lap exam on Thursday and I think my doctor plans to prescribe me Orlissa. I've heard Orlissa works by regulating hormones, therefore it won't work as well if you are also on hormonal birth control (which I am). I suspect I will be taken off the bc pill and put on Orlissa for ~6 months ---but what do I do for birth control for 6 months?

8 mini
A MyEndometriosisTeam Member said:

I think it's actually the opposite. I think Orilissa makes a combination pill not work bc Orilissa cuts down on the estrogen in your body. Like Kate… read more

edited, originally posted 6 days ago
5 medium

What do you suggest to try about chronic pelvic pain?

What do you suggest to try about chronic pelvic pain?

It’s like my pelvic pain is starting to become unbearable and no anti-inflammatory drug is helping. I’ve tried ketorolac, Diflunisal, tramadol, orilissa, I’ve now got the iud but I feel like it’s just getting worse. .

5 mini
A MyEndometriosisTeam Member said:

Thanks

posted 5 days ago
0 medium

Taking 1/2 of orilissa pill?

Taking 1/2 of orilissa pill?

I skipped a day of medication and today I tried taking half of the pill. I didn’t need to take a nap today. This medication makes me so exhausted. Has anyone else done this on the lower dose 150?

6 mini
A MyEndometriosisTeam Member said:

I did that once when i was on my conception pill then when i did that it made me tired and upset my period cycle. Now i am on HRT patches and pills i… read more

posted 6 days ago
3 medium

How to stop Orilissa?

How to stop Orilissa?

I’m on my second month of Orilissa and it has been quite a short ride. I have lost ten pounds since starting Orillissa because my anxiety has been so bad that I have trouble eating.
Do I just start taking my bc in place or Orillissa dose?

5 mini
A MyEndometriosisTeam Member said:

My doctor just stopped me because of the side effects was horrible for me . . And put me on a different type of birth control

posted 6 days ago
7 medium

Mirena IUD at the same time as Orilissa?

Mirena IUD at the same time as Orilissa?

I have adenomyosis in addition to endometriosis. My doctor is recommending that I try Orilissa at the same time as the Mirena IUD to treat both conditions. Has anyone heard of doing this? I am not seeing it mentioned online. Thanks!

4 mini
A MyEndometriosisTeam Member said:

I had endo and adenomyosis confirmed at my laparoscopy in Feb and had mirena put in - not finding it's helping w my pain and also have had 6x UTI since… read more

posted 25 days ago
5 medium

Lupron Depot treatment following Laparoscopic treatment for Endometrosis

Lupron Depot treatment following Laparoscopic treatment for Endometrosis

A little over a month ago, I underwent laparoscopic surgery to remove a cyst the size of a grapefruit from my left ovary. During that surgery, I was definitively diagnosed with severe endometrosis, and my doctor removed a number of endometriotic lesions.

--Background--
Prior to having this surgery, I was having severe pain when I ovulated. Excruciating pain that lasted hours, sometimes days, which affected my ability to attend work. My… read more

5 mini
A MyEndometriosisTeam Member said:

Thanks Shannon! This is helpful information. My doc is one of those specially trained experts, so I feel good about that at least. He's very… read more

posted 5 months ago
5 medium

Orilissa?

Orilissa?

Went to the doctor today to discuss finally doing a hysterectomy - but my doctor suggested I try Orilissa to treat my stage IV Endometriosis - Has anyone used? Any severe side effects?

Thanks in advance!

2 mini
A MyEndometriosisTeam Member said:

Please explain. I’ve been looking into it. What is it like?

posted about 1 month ago
0 medium

Did Orilissa stop working after a while?

Did Orilissa stop working after a while?

My doctor told me I may still get a period on this medication, and that it may stop helping the pain after a few months. has anyone had this experience on Lupron or anything? I just finished my first month of the medication, and I do see a difference, but I have not had a period yet. Not sure if my period will be livable on this medication either.

At this point, this is my last option before keyhole surgery, then trying to have kids, and then a hysterectomy.

6 mini
A MyEndometriosisTeam Member said:

I was on orilissa for 6 months and it was a nightmare! I do not recommend this medication to any woman with endo, especially if you are suicidal or… read more

posted 29 days ago
Continue with Facebook
Sign up with your email
Already a Member? Log in