Endometriosis

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Pelvic Floor Dysfunction? Vaginal Valium Suppositories?

Pelvic Floor Dysfunction? Vaginal Valium Suppositories?

Does anyone else have this condition? I went the doctor for a follow up after being in the ER. And after talking about the latest trip to the ER. My exam I was diagnosed with Pelvic Floor Dysfunction. The doctor said it was caused by body’s reaction to the pain from my sever cramps.

The doctor said that my pelvic floor muscles are too tight. (Which I didn’t know was possible.) Because of the natural gaurding respones to pain. And the doctor perscribed me… read more

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Partner/Family Support.. or lack there of?

Partner/Family Support.. or lack there of?

I’m almost not even sure how to start this & it’s very long.

I’ve been married to my new husband for two months, after dating for about a year. He was with me through my last endo surgery (two endometriomas which led to my left tube/ovary being removed). At the time, they weren’t 100% sure what they’d find and/or if there was cancer. He kept pushing for a full hysterectomy (I’m 37 and have 4 kids, he does not want kids). His thinking is to get everything out… read more

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A MyEndometriosisTeam Member said:

That’s awesome. Thank you!

posted 3 months ago
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Pelvic Floor

Pelvic Floor

I had my first surgery a few months ago. My doctor found an extensive amount of endometriosis in my pelvis. I’m still having quite a lot of pain. After my last exam he said my pelvic floor muscles are a wreck and is referring me to physical therapy. Has anyone had experience with this? What can I expect

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A MyEndometriosisTeam Member said:

I am wondering have you found a decent biofeedback device for at home pelvic floor therapy or a decent video on downtraining the pelvic floor? 'I am… read more

posted 6 months ago
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How quickly can endo come back?

How quickly can endo come back?

I was diagnosed with stage 3 endometriosis in 2017 during an excision surgery, then last year, I had to undergo another surgery because the pain was intolerable, and I was full of endo again. Now, four months later, my symptoms are returning again... I am only 25 years old... I don't want to have to do surgery every single year. I guess my case of endo is super aggressive even when being treated with hormone therapy. I don't know what to do... I don't know if I should get a read more

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A MyEndometriosisTeam Member said:

I'm in about the same situation as you. I'm 27 years old. I had surgery almost a year ago now, but my Endo pain came back within only a few months after… read more

posted 4 months ago
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Has anyone tried the Sexy Lady Balls protocol by Melissa Ramos?

Has anyone tried the Sexy Lady Balls protocol by Melissa Ramos?

Wondering if anyone has tried Melissa Ramos's Sexy Lady Balls protocol to deal with endo? I have watched her master class but have been hesitant to sign up because I am not sure if it will really help endo. She has coaching calls, recommends supplements, does hormone testing, provides recipes and does cooking classes as part of this web-based program. I could see it being helpful for hormonal imbalance and PCOS but she says she has endo members who… read more

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A MyEndometriosisTeam Member said:

So did you ever get it resolved? Nd could you cancel?

posted 10 days ago
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Does physical activity trigger flare ups

Does physical activity trigger flare ups

Anytime I walk for extended periods or run specifically I start cramping pretty bad. Even standing too long can result in serrious pain. I'm pretty active though so it stresses me out. Is this normal?

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A MyEndometriosisTeam Member said:

Before I went on the Lupo shot I would cramp pretty much all day and it would get really bad if after doing long periods of walking. I walk a lot for… read more

posted 19 days ago
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Physical activity? Painful or not?

Physical activity? Painful or not?

Does physical activity, effect your symptoms of endo?

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A MyEndometriosisTeam Member said:

I wake up on my good days feeling energetic go out walking do a mile but then I have a flare up and the pain is so intense I am in bed for the next 24… read more

posted 21 days ago
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Endo Diet

Endo Diet

I have been diagnosed with endo and had the scope with laser to remove the cells a year ago. I’ve been using bc as a hormone therapy for a long time. I’ve been doing research into holistic remedies along with medication. Has anyone looked into changing diet/a special diet? Any advice or things that worked?

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A MyEndometriosisTeam Member said:

I gave up wheat and instantly my cramps reduced from a 9 to a 1 out of 10. Still have other symptoms but helpful with the pain.

posted about 2 months ago
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The UNSPOKEN truth behind ENDO.. Opiates.

The UNSPOKEN truth behind ENDO.. Opiates.

So many of us deal with pain that would debilitate our lives, if we weren't able to sustain ourselves with some sort of medication to tackle the flair up. But what works the best?

Most of my doctors have put me on Tramadol first and Oxycodone when I explain how Tramadol doesn't do much for my pain. As well as nerve blockers and NSAIDS (Which I limit always to, when needed). HOWEVER, society has a different view on pain medication and I'm wondering if this has made… read more

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A MyEndometriosisTeam Member said:

I just really wished I could be able to take tramdol or ibpropin

posted about 1 month ago
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Synarel (plus HADT) Long Term

Synarel (plus HADT) Long Term

Hey All! I just joined after I found you while working on a paper. I recently discovered that Synarel hasn't really been tested long-term (or rather for longer than a year-long period). I do take norethindrone as an Add-Back Therapy but I am wondering if any of Y'all's experience or resources could tell me anything. I have already been on Synarel plus add-back for a year and I think I either have Stage III or Stage IV. I think I may be worrying too much because this has been the best… read more

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