Endometriosis

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Has anyone every tried Bioidentical hormone replacement therapy as treatment?

Has anyone every tried Bioidentical hormone replacement therapy as treatment?

Hey ladies quick question has anyone ever tried bio identical hormone replacement therapy as a form of treatment? I’m looking into treatments right now as the pain and symptoms I experience is so awful. I just want relief without losing the potential ability to conceive in the future. Please share your experiences if you have I would love to hear as it is very expensive and insurance won’t cover the costs so I would be paying out of… read more

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A MyEndometriosisTeam Member said:

Thank you sounds like it could be helpful but also maybe not so I’ll have to do more research thank you for your response.

posted 4 days ago
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Sex Life and Physical Relationship

Sex Life and Physical Relationship

I can count on one hand the times that me and my boyfriend have had sex in the last year- sad I know.
I just had excision surgery back in May and of course I'm terrified of getting back on the horse... seemed like an appropriate analogy. We have tried once since my surgery after waiting long enough and it still hurt but at the time I wasn't on any type of birth control so we had to use a condom and my fun parts have never agreed with most types. I'm thinking that was the main… read more

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A MyEndometriosisTeam Member said:

@JenniStander- I had stopped checking this for a while but I'm back.
Sex is a tricky part of a relationship when you have endo.
Some things that help:… read more

posted 5 days ago
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Did Lupron and add back therapy cause you to be exhausted all the time?

Did Lupron and add back therapy cause you to be exhausted all the time?

I am on my 2nd month of Lupron. I am taking norethindrone as my add back. I had the most disgusting night sweats, like changing the sheets every day, changing clothes in the middle of the night every night, my husband couldn't sleep in the bed it was so wet. The docfor put me on Prozac because some antidepressants are also good for night sweats and not flashes. The Prozac made me act very strange, so we switched to Zoloft. Mg question is,… read more

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A MyEndometriosisTeam Member said:

Exercise and healthy eating helps me. To try and motivate myself to exercise it is extremely difficult especially when the fatigue is at its worst. I go… read more

posted 15 days ago
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PSN Pre-sacral neurectomy

PSN Pre-sacral neurectomy

I want to ask my doctor about this, as no birth control or hormonal therapy really helps me. Does anyone know anyone that has had this done? Was it worth it? Doctors have told me opposite things. One told me it’s not done anymore, because it doesn’t really work. Other people have said that it is a 70% success rate with pain reduction.

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Pelvic Tenderness and inflammation?

Pelvic Tenderness and inflammation?

Hi everyone I'm a new member here,

I'm curious if anyone else experiences these attacks if they're normal of endo:

So it starts with mild cramping, what I'll take as a bowel cramp, I'll go to relieve myself but afterwords I'm met with an intense colicky stabbing pain right up my groin and backside and into the front of my pelvis where my uterus sits. Yesterday I had such a bad attack I went to the ER I couldn't physically cope with the amount of pain I was in.

My big question… read more

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A MyEndometriosisTeam Member said:

Hey there, I’ve experience similar issues. Maybe it’s not the exact same, but overall after I’ve had very severe flare ups or consistent flare ups I… read more

posted about 1 month ago
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Vasculitis and Rheumatoid Arthritis

Vasculitis and Rheumatoid Arthritis

Just wondering if anyone else has been diagnosed with Vasculitis or Rheumatoid Arthritis? I have stage 4 DIE endo. Diagnosed in early 40s so it was quite bad. I was recently diagnosed with vasculitis and RA, both are instances of my immune system attacking itself. I wonder if its connected to my endo- anyone else out there have this? Thanks :)

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A MyEndometriosisTeam Member said:

They test me for rheumatoid Arthritis my joints were hurting.

posted about 1 month ago
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Who diagnoses pelvic floor dysfunction?

Who diagnoses pelvic floor dysfunction?

Hi everyone, hope you are doing well today. My gyno/endo excision specialist says that I do not have pelvic floor dysfunction or prolapse based on his physical exam however my endo nutritionist and hypopressive instructor (if you have bloating I highly recommend looking into hypopressives btw) believe that I have it and told me to get further testing. Which type of doctor do I see for a diagnosis? Also any thoughts would be appreciated. I have a bulge down there and kegel… read more

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A MyEndometriosisTeam Member said:

I would try a pelvic floor PT to tx symptoms. They cant dx, but can give you insight

posted about 1 month ago
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Anyone with severe endometrial calcification

Anyone with severe endometrial calcification

So, to make it short and sweet I started my. About 11 and was diagnosed about 14 or 15. I was told I couldn't have children after several miscarriages in my late teens or early twenties. I had my miracle baby in 2011 when I was 23 but was on bed rest for 42 weeks and bled the entire pregnancy which I was told made the endometriosis turn into the calcified in the meet you out sis. I have had one hell of a time finding doctors or anyone that knows anything about… read more

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A MyEndometriosisTeam Member said:

Thank you! Ive NEVER heard of ither one...i found info on the frozen but NOTHING on the calcification... it's just what they diagnosed me with... when I… read more

posted 8 months ago
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Endo Diet

Endo Diet

I have been diagnosed with endo and had the scope with laser to remove the cells a year ago. I’ve been using bc as a hormone therapy for a long time. I’ve been doing research into holistic remedies along with medication. Has anyone looked into changing diet/a special diet? Any advice or things that worked?

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A MyEndometriosisTeam Member said:

I gave up wheat and instantly my cramps reduced from a 9 to a 1 out of 10. Still have other symptoms but helpful with the pain.

posted 4 months ago
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Had laparoscopy endometriosis last year and been getting sciatic pain for 4 years

Had laparoscopy endometriosis last year and been getting sciatic pain for 4 years

I've had sciatica pain and foot pain for about 4 years. I have told my doctor who did my 2 surgeries and he said it could be the endometriosis, but when he did the laparoscopy, he didnt see anything in the abdomen that was pressuring any nerves. I do have a mesh in my lower back and abdomen so that way the endo doesnt grow. I have tried all sorts of physical therapy, bought new shoes
/insoles, and nothing has worked. I get tingling… read more

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A MyEndometriosisTeam Member said:

I had sciatica for several years but it turned out it originated in the glutes-- the only thing that helped me was trigger point acupuncture (with an… read more

posted 9 months ago
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