Hi everyone, I am new here.
I have not been officially diagnosed with endometriosis from laparoscopy (which I hope to do so soon) but I have a few questions if anyone can help
I believe I've always had endometriosis but pain started occuring in 2020 out of no where. Pelvic pain, frequent urination, painful sex, abdominal pain, flank pain and long story short the doctors said I might have interstitial cystitis along, they found some pitchea and glomerations during my… read more
I got a message in my portal and so far they're saying we can do a diagnostic lap with excision of endo if found along with a presacral neurectomy because I'm not ready to have a hysterectomy yet. Any thoughts, pros/cons on the presacral neurectomy??
how was the presacral neurotomy?
I know this may be a private subject for some of you, but I'm curious how many of you are suffering from disrupted orgasm.
Right now I'm taking Tramadol and an occasional duiladid and not sure if that is disrupting an orgasm or if it's the presacral neurectomy I had done.
Yeah it sucks! And I'm still in pain so of course I'm not happy I had it done
Has anybody tried PRESACRAL NEURECTOMY? Is it effective for dyspareunia? I have an unexplained vaginal pain which is the worst of all. No doctor seemed to relieve me so far 😣
Sorry to know that 😣
I’m 23 years old and I am about to have my first laparoscopic excision surgery on March 3rd. Along with the excision surgery my doctor wants to do a presacral neurectomy. I have read that this either doesn’t work, makes the pain worse or makes orgasms nearly impossible. So I’m not sure if I should agree to do the presacral neurectomy or not. Any suggestions/opinions/experiences?
Totally. Each decision has pros and cons. I hope your surgeon fully goes over everything and you're comfortable with whichever decision you make.
My doc has been talking about doing a presacral neurectomy. The thought of it terrifies me, but at the same time i dont want to keep going thru 2 surgeries a year.. has anyone had this done? Pros and cons? Does it actually give long term relief?
I am trying to decide whether to try a presacral neurectomy, IUD, or just get a hysterectomy. I am having immense pelvic and rectal pain. It radiates down my legs.
I have adenomyosis and endometriosis. I have a surgical consult in April for a hysterectomy. Unfortunately none of the treatments we have tried have helped and I'm at the end of my rope. Feel free to… read more
Hello! I am having trouble finding pain medications that actually works to relieve pain. I have used narcotics in the past but those just make me sick. Ibuprofen and naproxen occasionally work but I need something that works! Any suggestions??
I take Co-Codamol and use heat patches x
Dr. Wants to try lupron. It's super expensive so why don't I just get a hysterectomy and get it all over with.
@A MyEndometriosisTeam Member Will do sis💛💛💛. Thank you.
How did your surgeon treat your adenomyosis?
Risk of PSN