Endometriosis

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What do you do for birth control while on Orlissa?

What do you do for birth control while on Orlissa?

I have my post-lap exam on Thursday and I think my doctor plans to prescribe me Orlissa. I've heard Orlissa works by regulating hormones, therefore it won't work as well if you are also on hormonal birth control (which I am). I suspect I will be taken off the bc pill and put on Orlissa for ~6 months ---but what do I do for birth control for 6 months?

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A MyEndometriosisTeam Member said:

I think it's actually the opposite. I think Orilissa makes a combination pill not work bc Orilissa cuts down on the estrogen in your body. Like Kate… read more

edited, originally posted 6 days ago
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How to get pain meds?

How to get pain meds?

So I had larascopic ablation and cyst removal done about two weeks ago. The dr prescribed tramadol for the pain. Unfortunately I left the script for the meds in my friends care who i cant get ahold of. I had a few pills left from a previous prescription but I'm down to 3 pills. Problem is that suddenly my pain has come back full force and now that I'm back at work I need the meds to get through my shift. I heard some people where able to get meds prescribed through pain clinics. How do I… read more

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A MyEndometriosisTeam Member said:

I can usually call my doctor and he'll send over the script electronically but tramadol is not something that you would want to keep taking the side… read more

posted 5 days ago
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Can you get pregnant while taking Visanne?

Can you get pregnant while taking Visanne?

I have been taking Visanne for 3 months and it has been amazing for the pelvic pain and bleeding. Prior to being on Visanne I had been bleeding for 2 consecutive months with no stop and was hospitalized 3 times for the pain.

I was finally referred to a gyno and she prescribed Visanne which started working immediately to my surprise and was such a relief. I was not told that this was not a birth control pill and was just told that they wanted to change my pill. I realize… read more

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A MyEndometriosisTeam Member said:

Hi. I’m new here and i would like to know how visanne works to prevent pregnancy? I’ve been on visanne for a month now.

posted 13 days ago
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Did Lupron and add back therapy cause you to be exhausted all the time?

Did Lupron and add back therapy cause you to be exhausted all the time?

I am on my 2nd month of Lupron. I am taking norethindrone as my add back. I had the most disgusting night sweats, like changing the sheets every day, changing clothes in the middle of the night every night, my husband couldn't sleep in the bed it was so wet. The docfor put me on Prozac because some antidepressants are also good for night sweats and not flashes. The Prozac made me act very strange, so we switched to Zoloft. Mg question is,… read more

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A MyEndometriosisTeam Member said:

Exercise and healthy eating helps me. To try and motivate myself to exercise it is extremely difficult especially when the fatigue is at its worst. I go… read more

posted 15 days ago
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Painkillers

Painkillers

I have suspected endometriosis and am looking for advice on painkillers if trying to conceive. I had a laparoscopy 2 years ago. No endo was found but had a merina coil fitted and all pelvic/ibs symptoms disappeared for about 18mths. Since then the pain and other symptoms have been gradually returning to the point of being quite severe (but not as frequent or long lasting as they were pre coil and no period just very light spotting).

Anyway I’m having my coil removed tomorrow as we are going to try… read more

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A MyEndometriosisTeam Member said:

@A MyEndometriosisTeam Member. I had no idea. I’ve been taking turmeric daily because i wantwd to stop Advil. Makes my heartburn nasty!

posted 15 days ago
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Updating people from yesterday’s question on surgery

Updating people from yesterday’s question on surgery

Hi everyone,
For some reason I can’t post this anywhere so I’m sorry if this is the wrong place or something. But I’m hoping it posts. I had my diagnostic lap. today. I know some of you were following my post where I asked for tips to see how today went. First, thank you all so much for your input in well wishes. I order an abdominal support band that was recommended to me, I’m hopefully it will help especially since I’m heavier and have a mommy pooch from my… read more

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A MyEndometriosisTeam Member said:

How long did it take you to recover? And how long before you were able to return to work or to go back to normal routine/chores?

posted 23 days ago
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PSN Pre-sacral neurectomy

PSN Pre-sacral neurectomy

I want to ask my doctor about this, as no birth control or hormonal therapy really helps me. Does anyone know anyone that has had this done? Was it worth it? Doctors have told me opposite things. One told me it’s not done anymore, because it doesn’t really work. Other people have said that it is a 70% success rate with pain reduction.

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When can I get something other than Ibuprophen for pain relief?

When can I get something other than Ibuprophen for pain relief?

I’ve been to two doctors so far over two years who have only changed my endometriosis management medication in response to pain complaints. For the past few years, I’ve been denied pain medication despite my symptoms getting worse and treatment being ineffective.

Ibuprophen takes days to work when taken on a schedule, and then it only helps somewhat. I’m bedridden during periods and in constant pain around the month. I’m tired of suffering while I… read more

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A MyEndometriosisTeam Member said:

I'm sorry your dealing with this. Are these two doctors you see gynecologists? Have you considered seeing other doctors or gynecologists to see if… read more

posted about 1 month ago
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orilissa/ mental health symptoms versus laparoscopy

orilissa/ mental health symptoms versus laparoscopy

Hello everyone!
I lived abroad for eight months and before I left I had a gyno that I didn't really like but needed birth control and Naproxen. I had a laparoscopy December 2014 and was finally diagnosed with endometriosis. Last summer I went to the er for pain and they found in the ultrasound that I had a cyst rupture in the past month (is that shit even normal? My body is weird as fuck sometimes). I have noticed endo pain increasing around my period, the… read more

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A MyEndometriosisTeam Member said:

My doctor wanted to put me back on BC but I said no. My husband and I just tried IVF and it didn't take but I'd still like to get pregnant if possible.… read more

posted about 2 months ago
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Sex

Sex

I can only have sex about once every so hours because after it would feel like alcohol in an open wound. And my boyfriend... enjoys himself a little to fast the first time around. I got a pain numbing ointment so I don't feel the pain and can enjoy sex (lidocaine; it must be prescribed knowing it's going inside of you over the counter lidocaine is for external use only and will not be good ) so how do I make the first time last longer so I get to enjoy it sometimes too

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A MyEndometriosisTeam Member said:

My puddin gets in a fo aswell. And i find it sumtimes to be uncomfy when im not in right position. Specially if i have inflammation. It doesnt help with… read more

posted about 2 years ago
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