I used to sleep great, but when I start getting endo pain I have a hard time staying asleep. If the tiniest thing wakes me up, that's it, I'm awake. If I take something before bed it wears off before it can help. And I don't always have an opportunity for a nap later in my day. Has anyone found a way to get restful, restorative sleep? Only getting 6 hours of sleep a night almost every night is really wearing me down.
When I get a flareup, I get about four hours asleep, so I usually take an edible and I sleep all night
Thank you x
Hi I hope someone can help I've been to my GP he did blood test and my estrogen levels are low I'm 47 it's causing a lot of problems down below he has prescribed 10mg of vagifem weekly to help I was a bit concerned because I said to him I taught that estrogen feeds endometriosis he said it was fine because it is a low dose and I'm not taking it by mouth so it's just helping the problem below has anyone tried this before as I'm getting really depressed cause I've tried all of the creams and… read more
Yes I was talking a low estrogen pill orally, it made everything so much worse than it would have been if I was just using my progesterone implant. The implant wasn’t controlling my bleeding so we… read more
I tried 3 IUDs and my body rejected all 3; then tried Norethrindrone and I hated it . My weight changed for the worse and it effected my mood. So I stopped . My doc told me about a newer pill called Slynd . Wondering if anyone else has had experience with this ?
You're most welcome. Incidentally, I'm not sure where you are in your endo journey. Birth control can help, but really they just mask symptoms. It's important that your doctor tell you that it doesn't… read more
I was curious if anyone else has ever noticed exercise helps symptoms? I was doing CrossFit regularly and I noticed my cramping, spot bleeding, pms symptoms subside. I noticed when I am heavily stressed they come full force. But doing intense exercise did the reverse.
I read in an article that doing core work is a no no due to pulling in the stomach and risking spreading the adhesions to the other side of the stomach ? It sounds logical doesnt it?
Has anyone ended up with a rash on their arm due to bowel endometriosis , I've had this persistent rash that comes and goes ,I was dealing with it my fasting and also taking cod liver oil both worked in making it disappear but now I have this really bad flare up of the rash and taking the cod liver oil even increasing it to 2 tablets instead of 1 isn't helping as much .I might have to go to the highest dose and see if that will make a difference.
Im not 100% sure the rash is directly due to bowel endometriosis but I know endometriosis can cause high inflammation in the body
which I believe the inflammation is causing the rash it would come… read more
Hi everyone! I am 25 and have learnt i have endometrioma in my left ovarian (4cm) and high CA125 level, my doctor wants me on Visanne. I have read so many side effects and therefore i couldnt dare taking Visanne.. I am on Yasmin contraceptive pill instead. My mother told me she also had endometriosis when she was few years older than me and even with endometrioma in one ovarian, she could get pregnant and give birth to my sister.. Could you share with me if you have similar experiences… read more
I've been on visanne for 6months. Almost 4months having this spot/slight bleeding. The next day right after finishing 6months taking visanne i got slight period. I dont know if it is normal. My endo… read more
Endo needs to be removed deep and wide by the excision technique. Not every OBGYN knows how. When it's done correctly the Endo has a very small chance of returning. Call one of these Surgeons and take care of yourself. If it's not possible to see one of these surgeons, still call and they can recommend a quality surgeon near you , who can give you good care.
Hiya
Im waiting for a second opinon on having a hysto as prostap and add back aint working if anything its making the pain worse and im now having irreg bleeds :/ im currently on gabapentin it… read more
I'm 17 years old right now and have been dealing with chronic pain(abdominal and migraines) since I was 12. It started with dually migraines and then went into daily nausea. I went to every odctot possible and they couldnt figure out what it was. I have been in the ER too often to count. It went over too extreme abdominal pain more in the upper area and then in the lower area also. I was checked for gallstones through ultrasound and blood tests. I also had a CAT scan done and two upper and one… read more
Love I am dealing with chronic pain I have both I trying to figure out what can help.
I feel like I am going crazy. I have asked my doctors again and again to check if I have an autoimmune disease but no one takes me seriously. Well, I got bloodwork done and of course I test positive for autoimmune antibodies. But wouldn't it make sense for people with endo to have positive autoimmune antibodies? Think about it. We have uterine tissue growing in places it doesn't belong. Can't your body recognize that as foreign and start attacking it? Obviously, I'm not a doctor but it just… read more
Yep women with endimetriosis have it high.