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A MyEndometriosisTeam Member asked a question 💭
Durham, NC

Has anyone had any success going to one of the many Endometriosis Centers out there? To receive excision surgery? I've had a laparoscopic vaporization surgery, and am in the middle of a lupron treatment, but the pain and endo are back after three months! Looking for a new doctor...

May 29, 2015 (edited)
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Answer Summary

Members shared overwhelmingly positive experiences with specialized endometriosis excision surgeons, emphasizing that true excision surgery... Read more

Members shared overwhelmingly positive experiences with specialized endometriosis excision surgeons, emphasizing that true excision surgery differs from typical ablation procedures because it removes endo at the root rather than vaporizing surface tissue, leading to longer-lasting relief and fewer repeat surgeries. Several members recommended specific doctors, including Dr. Seckin in Manhattan, Dr. Nezhat in San Jose, Dr. Koh, and Dr. Bulun in Chicago, with many noting that while these specialists may be out of network or require travel, the upfront cost is often worth it to avoid multiple failed procedures and ongoing pain. A recurring theme was the importance of finding a surgeon who prioritizes excision over hysterectomy, works to avoid unnecessary surgeries through holistic pain management when possible, and truly understands the complexity of endometriosis rather than offering quick fixes that don't address the root cause.

A MyEndometriosisTeam Member

My basic understanding is that not all laparoscopies are created equal. Most docs perform an ablation, which is essentially vaporizing the endo in place. An excision, however, is much more technical and only a handful of specialists actually perform this version of laparoscopy. They essentially go to the root and cut out the endo. Like a weed, if you just pull out the leaves its gonna grow back. But you have a better chance of prolonged relief if they get the root. You'll have to ask your doc or look at your OR report to see what kind you specifically received. So sorry to hear about your nerve damage - Yikes!

May 31, 2015 (edited)
A MyEndometriosisTeam Member

I did! I had surgery with an excision specialist Dr. Nezhat at Center for Special Minimally Invasive and Robotic Surgery in May and it was the best thing I've done. I travelled all the way from Nashville to San Jose, CA. I had surgery with a regular obgyn about 6 months before excision which obviously did nothing for my endo because with excision I was diagnosed with stage IV! I declined Lupron and went with excision and I would definitely do it again.

October 26, 2015 (edited)
A MyEndometriosisTeam Member

To me, it's not the PLACE....it's the surgeons themselves and to a certain degree more importantly the nurses. Is it worth going to a place insurance may or may not cover, if it means fewer surgeries in the long run? Dr. Bulun is one of the best in the world for Endo, but is located in Chicago. I don't know if it's worth traveling that far to you because that would probably be out of network. He didn't do my surgery but has been my pain management doctor for a year. Absolutely amazing. He works with you to AVOID undergoing surgery if there are alternatives that will work first. I like that part. He also understands that there's the right way of combining naturalistic/holistic pain management with pills that don't ruin the stomach, liver and kidney.

May 31, 2015
A MyEndometriosisTeam Member

@A MyEndometriosisTeam Member I was out of work for about 2 weeks and definitely sore after because he did a lot of work. I only stayed one night in the hospital though and was "walking" shortly after.

June 16, 2015
A MyEndometriosisTeam Member

Pamela, Dr. Bulun. Right in the greater Loop area with Northwestern University Feinberg school of Medicine. (Phone number can only be seen by the question and answer creators)

June 1, 2015 (edited)

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West Palm Beach, FL

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