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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I'm just now starting the dignostic process after finding the right care team. What do you wish you'd had someone tell you at this point?

A MyEndometriosisTeam Member asked a question 💭
Asheville, NC

. Have been placed on Natazia by specialist
. Gyno recommended Myfembree
. Have gotten several ultrasounds (obvs to no avail)
. Am in the process of getting consults for endoscopy

August 31
 · 
Be the first to react
A MyEndometriosisTeam Member

I had an endoscopy and colonoscopy. They showed nothing but made my symptoms more believable to doctors. I've had 3 surgeries for endo and will have another in a few months. The road is long and in my case surgery didnt put it into remission. Myfembree wasnt an option because it $1600 a month so my only choice is surgical menopause at 46.

1 day ago
MyEndometriosisTeam

First of all — finding the right care team is genuinely one of the hardest parts, so that's a big deal worth acknowledging! Here are some things that many people wish they'd known earlier in their endometriosis journey: Trust yourself and your symptoms

- Ultrasounds frequently miss endometriosis — so you're right to push Show Full Answer

First of all — finding the right care team is genuinely one of the hardest parts, so that's a big deal worth acknowledging! Here are some things that many people wish they'd known earlier in their endometriosis journey: Trust yourself and your symptoms

- Ultrasounds frequently miss endometriosis — so you're right to push further
- A laparoscopy is currently the gold standard for diagnosis, so pursuing that consult is the right move
- Keep a detailed symptom diary to bring to appointments — timing, severity, triggers Advocate loudly for yourself

- If a doctor dismisses your pain, it's okay to seek another opinion
- Bring notes, articles, or books to appointments — being informed helps doctors take you more seriously
- One MyEndometriosisTeam member saw 10 doctors before getting a proper diagnosis Build your care team broadly

A strong team can include:
- A gynecologist or specialized surgeon
- A pain specialist
- A hormone specialist if needed

Research shows combining treatments from different specialties leads to better outcomes. Be open and honest with your doctors about what's working and what isn't — including how Natazia and Myfembree are making you feel. Open communication really does shape the quality of care you receive.

You're already doing so many right things. Keep going! 💛

August 31

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