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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEndometriosisTeam Member asked a question 💭
Memphis, TN

Okay ladies I need your opinions. I've had my lap and was diagnosed with Endo in November 2015. The doc removed what she could as well as some large adhesions where my uterus was attached to my abdominal cavity. However she said there were some lesions in the backside of my uterus she couldn't reach. The pain since the lap has still been horrible especially on my period. I've seen a gastrologist and also had a colonoscopy to rule out abdominal/colon issues. Now I'm seeing an Endo specialist who… read more

January 6, 2016 (edited)
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A MyEndometriosisTeam Member

Well I know it’s been a while but I wanted to give everyone an update.... I decided not to try Lupron. I didn’t want to risk the side effects and also to go in the search for yet another doctor. I found one I really connected with and listened to me. Long story short he did two more surgeries in the past two years in me trying to remove all the endometriosis. But each time it cane back worse than the time before. Then I began to develop endometrioma cysts all over both ovaries. Some of these cysts, although not cancerous, would burst snd I’d end up in the ER (I was s regular by this time). So he finally told me that the best thing to do for the health of my body was just to remove both ovaries and my uterus. I had that done in May 2017 and I do not regret it one but! Although my hormones are jacked I’m taking hormone pills everyday and if I miss them I get extreme hot flashes! Lol yes my sex drive is quite different and my fear of pain will probably take years to cure- however there is NO PAIN! For that I am grateful. And hey the best part is I can wear white! Anytime. Anywhere. No bloating, no pms. I will say I gained weight- very quickly- and it’s VERY hard to lose. But again it’s worth it!

June 5, 2018
A MyEndometriosisTeam Member

I'm on Lupron right now. I take the 11.25 every 3 months for 6 months and I go get my 2nd shot next month. I was very uneasy to take it at first because of all the bad side effects, but I'm glad I did. My first month was terrible, I had cramp, hot flashes, night sweats and it messed with my emotions, but after I got through the first month it hasn't been bad at all. I've been on it for almost 3 months and the only symptoms I have it hot flashes and night sweats. I have had no periods and no pain for 2 months, so I'll take hot flashes any day over terrible pain. Good luck on your decision!

January 12, 2016
A MyEndometriosisTeam Member

I have heard bad things about Lupron. After my lap my period pain was horrible. You have had trauma to your body and things removed from inside of you. It takes time to heal. But, with that being said, I did eventually get on the pill because my period pain was still bad enough after two years since my lap and this is the first month after six months of being on the pill that I didn't have a period and no pain. Good luck.

January 8, 2016
A MyEndometriosisTeam Member

Following, my gyno wants me on the lupron to ive read so many bad and good stories. Im so nervous. Would like to know more too

January 11, 2016
A MyEndometriosisTeam Member

Lupron was suggested well more pushed big time on me, after much research and speaking with my family doc and a few others it was advised not to use it! The side effects scared the crap out of me but putting my body into chemical menopause from chemo therapy drugs made no sense to me since it was first advised for a hysterectomy 10 years ago. Good luck in whatever decision you make!

January 7, 2016

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