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Hi; I am in my mid twenties and was struggling for about a year to get a diagnosis but was eventually diagnosed in August with endometriosis. My gynecologist explained that pretty much any type of pelvic, vaginal, etc. pain is to be expected with endo but my symptoms do change week to week, anything from nausea to back pain to searing pelvic pain to bad cramps, etc. The only thing that is constant, regardless of what period of my cycle I am in, is a sharp pain about an inch in from my hip bone… read more
Answer Summary
Members connected over the frustrating experience of trying to describe a sharp, tugging pain about an inch in from the hip bone on both... Read more
@A MyEndometriosisTeam Member Ask away! I’ve gotten very comfortable discussing personal issues over the last couple years. I do notice a difference with pressure, but it’s the opposite. A full bladder is extremely painful and it’s difficult to eat large quantities of food, BUT my physical therapist will apply pressure externally which helps. I’ve read that a lot of women get relief by sitting in a fetal position, which is probably because the pressure provides relief. (This used to help me too, but doesn’t anymore. The endo is on my bowel now, so that much pressure on my stomach sometimes makes me vomit.)
Also, I agree with the other women—I hope your doctor listens! If not, get a new one. I wasted too many years trying to explain pain to doctors who thought the disease wouldn’t present that way. I started seeing a specialist 6 months ago. It was so refreshing to have someone say my symptoms were common with endo...
Okay. So you've had the lap and have been properly diagnosed. That's good. Honestly, I think you should seek out an endo specialist, a true one. Some gynos say they are when they really aren't. A true specialist will know what you mean by tugging. Idk if they removed any endo during your first lap but if they didn't, you need to see an excision specialist to have it excised. This will be your best option for longer pain relief!
I also regularly feel the “tugging” sensation in that area. To me, it feels like the fascia is slowly being ripped from the muscles and organs in my pelvis. It took several years for my doctor to take me seriously. When he finally performed a laparoscopy, it took three hours to remove scar tissue and endo from the ligaments surrounding my pelvis. My physical therapist said the “tugging” sensation was probably from the scar tisssue. My physical therapist gives me exercises and pelvic/vaginal massages to help release the muscles and break down excessive scar tissue. I find it really helpful if you can get over the discomfort of having a stranger poke around that area.
I feel pain in that spot too! I describe mine as "pinching".
I’m right there with you! I feel that very specific pain too, and my symptoms do vary as well. Sometimes that’s the only pain I feel tho. And it’s very strange because my gyn diagnosed me with endometriosis on my left ovary but Sometimes I feel that pain on my right side too.
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